This topic is about a 28-year-old who is experiencing significant challenges after undergoing a sigmoid colostomy due to an inherited neuro-bowel disorder. The surgery, intended to improve life quality, has instead resulted in constant pain, odor issues, and severe lifestyle impacts. Here are some insights and advice shared by others:

1. Seek More Specialized Opinions
- Consider consulting additional colorectal or neuro-gastro teams at major university hospitals for more specialized care.
- Explore disease-specific forums for shared experiences and advice.

2. Diet and Nutrition Ideas
- Keep a food journal to identify any solid foods that might be tolerable, such as well-cooked spinach, chicken, or mashed potatoes.
- Try small, frequent meals or smoothies with protein powder to manage intake.
- Consider total parenteral nutrition (TPN) if necessary for maintaining weight.
- Explore elimination diets to see if they help reduce symptoms.
- Avoid foods known to cause gas, and consider using products like Beano or Gas-X.

3. Odor-Control Techniques and Products
- Use pouch deodorants and toilet drops to manage odor.
- Change pouches frequently and contact manufacturers if there are issues with the product.
- Consider using external layers like Stoma Cloak covers and lightly scented products.

4. Mechanical and Equipment Options
- For those with gas-dominant colostomies, consider irrigating nightly and using stoma plugs with charcoal filters.
- Use non-vented pouches and rinse bags frequently to maintain an airtight seal.

5. Gas and Bloating Strategies
- Try simethicone, gentle exercise, or short walks after meals to alleviate gas and bloating.
- If air-swallowing is an issue, consult a doctor about possible treatments.

6. Support Resources
- Connect with local groups and attend conferences through the United Ostomy Associations of America.
- Explore online resources and forums for additional support and information.

7. Coping and Mental Health
- Engage with ostomy support circles to share experiences and find emotional support.
- Keep experimenting with diet, appliances, and routines to find what works best, and seek multiple opinions for guidance.