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40,787 members
May 05, 2015

Regretting Ostomy - Seeking Support and Advice

Topic Explanation:
The forum topic is about a user, Jpeters, who is regretting the decision to have an ostomy due to ongoing pain, bloating, and odor issues. They are seeking support and advice from the forum members who have had similar experiences.

Advice and Insights:

- Seeking Medical Advice:
- Encouragement to seek another medical opinion, possibly from a forum dedicated to neuro disorders.
- Suggestion to keep pursuing a diagnosis and consider a second opinion from a different medical team.
- Recommendation to explore specialized programs and larger hospitals affiliated with major universities for potential solutions.

- Diet and Nutrition:
- Advice to keep a food journal to identify potential triggers for bloating and odor.
- Suggestions for dietary adjustments, such as trying a liquid diet, protein powder, and smoothies.
- Recommendation to consider TPN (total parenteral nutrition) for supplemental nutrition if malnourishment becomes a concern.

- Ostomy Care and Odor Management:
- Tips for managing odor, including using deodorants, changing pouches daily, and using products like Stoma Cloak.
- Advice to consider wearing panty shields or larger pads to manage odor and cleanliness.
- Recommendations to explore different ostomy products and reach out to manufacturers for assistance with odor control.

- Emotional Support and Community Engagement:
- Encouragement to attend an ostomy support site or a conference to connect with others who have had reversals and seek advice.
- Supportive messages and empathy from forum members, acknowledging the challenges and expressing understanding of the user's struggles.

- Personal Experiences and Insights:
- Sharing personal experiences with ostomy surgery, including challenges and successes, to provide perspective and support.
- Acknowledgment of the user's difficult situation and validation of their feelings, emphasizing the importance of individual autonomy in medical decisions.

- Alternative Approaches and Lifestyle Changes:
- Suggestions to explore alternative treatments, such as gas-relief medications and tranquilizers, to alleviate discomfort.
- Recommendations to consider lifestyle changes, such as sunlight exposure, sleep quality, and elimination diets, to potentially improve overall well-being.

- Legal and Ethical Considerations:
- Acknowledgment of the user's right to make decisions about their own medical care and the importance of respecting individual autonomy in healthcare choices.

- Professional Achievements and Cop
See full discusison
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