Living with a stoma can be a unique journey, and this topic explores the experiences of someone who received an ileostomy at the age of 15. They lived with it until they were 24, at which point they transitioned to an ACE (Antegrade Continence Enema) stoma. After 15 years of managing a stoma, they are now reaching out to both older and younger ostomates to share experiences and learn about living long-term with a stoma. They are open to questions, mutual support, and general conversation about navigating life with a stoma, including school, university, and early employment.

Here are some helpful insights and advice:

1. The ACE procedure involves using the appendix, or a small bowel segment if the appendix is not available, to create a small stoma. This is usually located at the navel or just below the underwear line. A catheter is inserted through this stoma to perform an ACE washout, which helps flush the colon and empty it via the anus.

2. For real-time support, consider joining the site’s chatroom on weekdays around 5–6 p.m. or 11 p.m. EST. Many members gather during these times, although some may appear online simply because their chat window is open.

3. Sharing your story can be a powerful way to connect with others. Starting a blog about your experiences growing up and working with both an ileostomy and an ACE can be of great interest to other members.