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Jul 14, 2015

Terrified of Upcoming Surgery - Need Sympathy and Comfort

This topic is about a person named Sandy who is preparing for a life-changing surgery due to rectal cancer. She will have a permanent colostomy, which is understandably causing her a lot of fear and anxiety. Sandy is worried about practical aspects like diet, clothing, and managing the colostomy pouch, and she is seeking support and reassurance from others who have been through similar experiences.

Here are some helpful insights and advice for Sandy and others in similar situations:

1. Life & Attitude
- Many people find that having an ostomy allows them to return to a full, active life. It's important to focus on being disease-free.
- Emotional ups and downs are normal. Depression can occur, but temporary help from a counselor, medication, or peer support can be beneficial.
- Keep motivating photos or goals around the house and take recovery one day at a time.

2. Post-Surgical Healing & Hernia Prevention
- Follow lifting restrictions carefully to prevent parastomal hernias.
- A gel-filled seat cushion can help ease pain while rectal stitches heal.

3. Diet & Hydration
- Start with soft, low-fiber foods like baked chicken, mashed potatoes, canned veggies, and pasta. Avoid corn early on.
- Introduce new foods slowly, chew thoroughly, and stay hydrated with water or sports drinks.
- Avoid large greasy or high-fiber meals soon after surgery.

4. Odor Control
- Odor is usually only noticeable during emptying or changing the pouch. Deodorants like Na’scent, Safe n’ Simple, and M9 are recommended.
- Blue deodorant drops can tint pouch contents, which is normal.

5. Pouch Change Frequency & Capacity
- Change routines vary: wafers every 3–4 days, pouches 1–3 times per day or when one-third to half full.
- The weight of the pouch can signal when it's time to empty.
- For high output situations, use large-capacity pouches or an irrigation sleeve.

6. Appliances & Supplies
- Recommended brands include Coloplast Sensura and Hollister M9 deodorant.
- Support garments like Comfizz waistbands help keep the pouch flat under clothing.
- Use inexpensive dog-waste bags for disposal.
- For samples or alternatives, check the United Ostomy Associations supplier list.

7. Skin Care & Leak Prevention
- Ensure the wafer cut-out matches the stoma, which may shrink in the first weeks.
- Apply Vaseline or unscented lip balm around the opening before re-sealing.
- Use medical tape to reinforce adhesive during heavy sweating.

8. Clothing
- Initially, wear loose, non-binding waistbands. Most people return to pre-surgery clothes once swelling subsides.
- Fitted clothes become comfortable again with time and support garments.

9. Colonoscopy Through a Stoma
- Usually done with light anesthesia and a pediatric scope, with minimal discomfort.
- Empty the pouch frequently during prep to prevent overflow.

10. Insurance & Cost
- If supply limits are inadequate, request a physician "medical necessity" letter for higher quantities.
- Medicaid, Medi-Cal, and some hospitals provide supplies if uninsured.

11. Coping Tips
- Naming the stoma can help with acceptance.
- Keep a bedside or travel kit with spare supplies.
- Rest often, as fatigue is normal after treatment and surgery.
See full discusison
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