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Jul 15, 2015

Seeking Guidance for Aunt's Complicated Ileostomy Case

This topic is about managing a complicated ileostomy obstruction in a person with advanced ovarian cancer. The situation involves a 52-year-old woman who had an ileostomy due to bowel obstruction from metastatic ovarian cancer. After initial recovery, she experienced a complete stop in stoma output, leading to severe symptoms like nausea, cramping, vomiting, and light vaginal bleeding. Despite hospitalization and various treatments, relief was minimal, and further surgery was not recommended. The focus is on finding non-surgical ways to manage the obstruction and improve comfort.

Here are some pieces of advice and insights shared by others:

1. Nausea control
- Medical cannabis (marijuana) is reported by several people to be highly effective in reducing nausea related to ileostomy and in stimulating appetite. It has been noted to prevent vomiting most of the time, although it may be less effective for other types of pain, like kidney stones.

2. Treat obstruction as urgent and seek broader medical input
- A complete lack of stoma output is a serious issue. It is advised to seek a second opinion and, if possible, consult a hospital or surgical team with extensive experience in ostomy care, as the quality of care can vary significantly.

3. When curative options are exhausted, emphasize palliative care
- If the disease has spread too far for corrective surgery, the focus should shift to comfort. This includes aggressive pain management, anti-emetics, hydration, and emotional support. Caregivers should also be prepared for potential complications like fistula formation, where stool may be diverted through other paths due to tissue erosion by tumors.

4. Emotional and spiritual support
- Providing comfort, being present, and respecting the patient’s wishes are crucial when medical options are limited. Members of the forum offered condolences, spiritual reassurance, and encouragement to caregivers dealing with the situation.
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