This topic is about sharing personal experiences with J-pouch reversal surgery, which is a procedure that creates a J-shaped pouch from the small intestine to help people who have had their colon removed. The original poster is curious about how well this surgery has worked for others, both in terms of success and challenges.
Here are some insights and advice from people who have gone through this surgery:
1. Long-term success is possible. Some people have had a fully functional J-pouch for many years. For example, one person has had theirs working well for 15 years, and another's niece has had excellent results for 8 years with only minor issues.
2. Complications can still happen later on. Even after years of good function, problems can arise. One person developed a small-bowel twist after 15 years, which led to a temporary ileostomy after part of the bowel was removed. They hope to reconnect in the future.
3. Some J-pouches fail early. There are cases where people experience severe issues like bleeding, anemia, and constant urgency within a short time, such as 18 months. This can lead to the need for a takedown and a return to an ostomy. In one instance, multiple surgeries were needed, and the person contracted hepatitis C from a transfusion.
4. The technique and era of the surgery matter. Surgeries done in the early 1990s might not have the same outcomes as those performed today, as newer surgical methods may offer better results.
5. Fewer surgeries are generally better. If the initial construction of the J-pouch is successful, it can help avoid additional operations and complications later on.
6. Overall, results vary greatly from person to person. Some people enjoy many years without symptoms, while others face significant challenges. It's important to weigh the potential benefits against the possibility of needing further surgery and dealing with complications.
See full discusison