This topic is about managing life with multiple abdominal hernias, adhesions, and a permanent colostomy. The person sharing their experience has faced a long journey of complex gastrointestinal issues since birth, leading to numerous surgeries and ongoing health challenges. Here are some insights and advice that might be helpful:
1. Psychological support:
- Continuing therapy is a good step. Managing anxiety and depression can help improve overall coping and might even ease some physical symptoms.
2. Acknowledge the limits of medical intervention:
- It's important to recognize that excessive scar tissue, known as adhesions, can be difficult to control. Sometimes, emotional and practical support are the most valuable resources available.
3. Alternative nutrition route:
- It might be worth discussing with a new surgeon or gastroenterologist the possibility of long-term enteral or parenteral nutrition. This could involve a feeding port or central line for Total Parenteral Nutrition, which bypasses the digestive tract. This approach has helped others regain quality of life, with regular nutritional support provided at a hospital-based infusion center.