Recovering from a new colostomy can be a challenging journey, especially when it comes unexpectedly. This is about finding your way back to feeling "normal" after surgery, dealing with fears, and making choices about the equipment you use. Here are some helpful insights and advice to guide you through this process:
- In the early weeks, it's normal to feel exhausted, anxious, and emotional. Many people find that acceptance grows over time, and they return to activities they love, like swimming, traveling, and gardening. Celebrate small victories and take things one step at a time. If anxiety becomes overwhelming, consider short-term medication.
- Support is crucial. Reach out to local ostomy support groups, family, friends, and online forums. Resources like The Phoenix Magazine and the "Tips from OstoMates" section can be very helpful.
- A good WOC/ostomy nurse is invaluable. They can provide guidance and support, especially in the first few weeks. Don't hesitate to ask for visiting-nurse services if they're not offered. They can also help with getting samples and sizing assistance from companies.
- Finding the right equipment can take some trial and error. Your body shape will influence what works best for you. Some popular options include Convatec moldable two-piece systems, Hollister two-piece systems with convex wafers, and Coloplast Sensura Mio systems. If you have a recessed stoma, convex wafers or deep-dish barriers might be more suitable.
- To manage odor, consider using deodorizers like M9, Na’Scent, or Safe n Simple. Flushable pouch liners can also help extend the life of your outer pouch. For clothing, snug "boy-shorts" or specialty underwear can keep your pouch discreet and reduce tugging.
- If you're worried about leaks, make sure the wafer is cut or molded to the right size and applied to dry skin. Carry a "just-in-case" change kit when you're out and about.
- When it comes to diet, introduce new foods slowly and chew thoroughly. Stay hydrated and consider using Imodium for watery output or a fiber supplement for thickening. Some people learn irrigation techniques to manage output more predictably.
- If you're considering a reversal, take your time. Ensure you're fully healed and consult with an experienced colorectal surgeon. Some people choose to keep their ostomy for quality-of-life reasons.
- Remember, many long-term ostomates report that they eventually "forget it's there" and lead full, active lives. With time, equipment adjustments, and support, you can find your way back to feeling normal.
See full discusison