Topic Explanation:

The forum discussion revolves around Debbi, who underwent an emergency ileostomy in October 2015 due to a surgical error while being treated for COPD. Post-surgery, she experienced severe complications, including contracting C-diff, and was in a coma. Since her discharge in January, she has been bedridden due to immense pain and weakness, questioning how much pain is normal post-ileostomy. Her family, particularly her sister, has been resistant to her seeking further medical help, complicating her recovery and pain management.

Advice and Insights:

1. Seek Medical Help:
- Pain of the magnitude described is not normal and requires medical attention. It is crucial to find a competent doctor or medical facility to address the pain and underlying issues.
- Consider consulting specialists such as a pulmonologist or gastroenterologist for comprehensive care.

2. Family Dynamics:
- Address family resistance to seeking medical help. It is important to communicate the severity of the pain and the necessity of medical intervention.
- If family members are present during doctor visits, ensure the doctor clearly communicates the need for hospital visits if pain persists.

3. Pain Management:
- Explore different pain management options, balancing the need for relief with potential side effects.
- Consider the use of painkillers judiciously, possibly with professional guidance to avoid dependency.

4. Legal and Medical Records:
- Attempt to obtain medical records to understand the procedures and complications experienced. This information is vital for informed medical decisions and potential legal action.
- Seek legal advice to explore options for obtaining medical records and understanding rights regarding medical negligence.

5. Support and Resources:
- Utilize support groups and resources for individuals with ostomies for advice and shared experiences.
- Contact organizations like the United Ostomy Association for support and information on living with an ostomy.

6. Product and Care Guidance:
- Reach out to companies that manufacture ostomy products for advice and free samples to find suitable supplies.
- Consider home healthcare services for assistance with wound care and learning to manage the ostomy.

7. Physical and Emotional Recovery:
- Break down recovery into manageable steps, focusing on immediate needs like pain management.
- Consider physical therapy to regain strength and mobility gradually.

8. Community and Online Resources:
- Explore local and online support groups for additional guidance and emotional support.
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