This topic is about someone who has been living with Crohn’s disease for 23 years and is now dealing with the challenges of having a third ostomy. They are experiencing both physical pain and job insecurity, which is understandably overwhelming. Here are some key points and advice shared by others:

- The recent surgery was meant to address a highly-prolapsed loop ostomy by converting it to an end ostomy. However, the placement feels incorrect, leading to constant pain.

- Despite working with the same employer for 18 years, the person is facing pressure to leave their job. This is happening even though they have submitted the necessary FMLA paperwork, which the company has mishandled multiple times.

- The combination of a difficult ostomy, ongoing pain, and the fear of job loss is causing significant stress, prompting the person to seek support.

Additional details include:

- The latest surgery involved a fistulectomy for a subcutaneous fistula. Although the surgeon initially downplayed the need for another ostomy, it turned out to be permanent due to multiple internal fistulas and a blockage below the ileal pouch.

- The ostomy output is highly acidic and leaks quickly, with wafers rarely lasting more than two days despite trying various solutions.

- There is concern about being a burden to a new wife and her daughter, who recently moved from the Philippines.

Advice and insights offered by others include:

- Emotional support: Sharing frustrations and venting can be therapeutic, and the community encourages this as a way to cope.

- FMLA/Job protection: While on approved FMLA or short-term disability, an employer cannot legally terminate employment. It may be necessary to ensure the correct filing of paperwork and seek HR or legal assistance if needed.

- Coping approach: It can be helpful to focus on addressing one issue at a time, prioritizing health first and then job concerns. Leaning on community support can help prevent feeling overwhelmed.

- Empathy: Others with similar experiences of ulcerative colitis or Crohn’s disease understand the pain of flares, surgery, and employer misunderstandings, reinforcing that the person is not alone in their struggles.