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Aug 21, 2016

Seeking advice on pushing doctors for bag removal

This topic is about someone who has been living with an ostomy bag for nearly six months and is considering whether to push for a stoma reversal. They feel physically well but are struggling with the emotional and practical challenges of having an ostomy. With an upcoming appointment with their doctor and surgeon, they are wondering how assertive they should be in requesting the reversal of their stoma.

Here are some pieces of advice and insights that might be helpful:

1. When discussing with your surgeons, be assertive but not aggressive. Clearly explain how the ostomy bag is affecting your life and ask for their assistance. Aggression might lead to resistance and less cooperation from your medical team.

2. Carefully weigh the risks and benefits before deciding on a reversal. Some people have undergone reversals only to face new complications, additional surgeries, hernias, and more scarring, particularly in cases involving Crohn’s disease.

3. Consider that keeping the stoma might be the safer option in some situations. Make sure your decision is based on logical reasoning and medical facts rather than just emotions.

4. While you are deciding or waiting, try these coping strategies:
- Stay active and involved in work or hobbies to boost your confidence, such as driving a taxi or returning to a trade.
- Use distraction techniques by focusing on new interests or engaging in adrenaline sports to make the issue seem smaller.
- Build a strong support network with family, friends, or online communities, and keep communicating. Reaching out is never a bother.
- Understand that recovery and adaptation take time, so don’t rush the healing process.

5. Keep an eye on your overall health, such as managing high blood pressure, and share all medical details with your healthcare team to ensure stoma decisions are made with your general health in mind.

6. If you experience discomfort with your appliance, like suction or pain, keep trying different pouching systems until you find one that fits well. Peer forums can be a great resource for comparing products.

7. Thoroughly research all surgical options, such as BCIR, and gather as much information as possible before requesting a specific procedure.
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