Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,452 members
Aug 23, 2016

Seeking Advice on Colostomy After Chemo and Radiation

This topic is about someone who is dealing with stage-3 rectal cancer and is considering having a colostomy after undergoing chemo-radiation. They are worried about how this surgery might affect their lifestyle, including concerns about the visibility of the pouch, odor, and the opinions of others. They are also questioning whether the surgery is necessary if the chemo-radiation successfully eliminates the cancer, and whether having a stoma will improve their quality of life or just extend it.

Here are some helpful insights and advice shared by others:

1. Quality-of-life outlook
- Many people who have had a colostomy report a much better quality of life after surgery compared to dealing with pain, incontinence, or active cancer.
- Once healed, most daily activities like work, sports, travel, and even running businesses can be resumed, with any limitations often being self-imposed.

2. Surgery versus “watch and wait”
- It's important to note that while chemo-radiation can shrink tumors, it often doesn't eliminate them completely. Surgery, such as a resection or colostomy, is what can cure or prevent the cancer from coming back.

3. Irrigation option
- Consider asking your surgeon if you are a candidate for colostomy irrigation. This can help manage output and may allow you to wear a stoma cap instead of a pouch during the day.

4. Odor management
- Modern pouches and deodorants make odor rarely noticeable.
- Some people install a high-powered exhaust fan in their bathroom for quick air exchange.
- When traveling, emptying the pouch in large public restrooms and using commercial deodorizer drops or sprays can help.

5. Concealment & clothing
- Pouches can be easily hidden under regular clothing.
- Women often wear dresses, leggings, stretchy waistbands, and long tops, while men report no visibility issues with everyday attire.

6. Physical precautions
- Be careful with heavy lifting to avoid hernias, but otherwise, you can pursue normal exercise and work activities.

7. Emotional & social perspective
- Being open about your situation can reduce anxiety, and most people respond with empathy to cancer patients.
- It's important to choose medical professionals you trust and to have supportive family and friends around you.
- Many emphasize the importance of valuing life, with a reminder that there are more limitations when you're no longer around.

8. Reliable information sources
- Cancer Centers of America (cancercenter.com)
- Mayo Clinic (mayoclinic.org)
- Johns Hopkins Medicine (hopkinsmedicine.org)
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,452 members.

“I found real people, real humor, and answers I couldn’t get anywhere else.”

“The support here impressed my husband’s medical team - they plan to recommend it.”

“This community saved me when I thought I was a freak. Now I’m thriving.”

“Thank god for this site - I finally knew what to ask my surgeon.”

Join Free

Popular Topics

Odd shaped stoma
Alcohol and Leakage Concerns for Ileostomates
Travel Tips for Ostomates Visiting Switzerland
Best Ostomy Support Belts for New Users
Deciding to Keep My Colostomy: My Personal Journey
LIFE BACKWARDS
BIONIC MAN
hello Stomies:-)
Shiny Skin and Rash Issues with Ostomy Products
Ileostomy and Kidney Disease: Seeking Advice and Experiences

New Topics

AGING WITH AN OSTOMY
Fashion trends
Let’s see them
B. Withers-Be kind 133
Issues with Filterless Bags and Baby Oil
RUBBERNECKING
Autism
Arthritis
Kerry hopefully going home next week
Powerful spiritual healer +27762248449-))Sangoma -traditional healer -love spell caster in upington,rustenburg,alberton,richards bay,mahikeg,borksburg
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑