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Dec 28, 2016

Occasional Knotted Feeling in Bowels with Ileostomy

This topic is about a person who has been living with an ileostomy for five years and has recently started feeling a knotted or twisted sensation in their bowels, especially when stretching or changing positions, like moving from reclining in a bathtub to sitting up. They are curious if others have experienced something similar and are seeking advice.

Here are some helpful insights and advice shared by others:

1. Many people have experienced a similar sensation, and it is often due to intra-abdominal adhesions, which are bands of scar tissue that can form after abdominal surgery.

2. These adhesions can sometimes feel like a rope or knot under the skin. While they are often harmless, they can occasionally cause pain or lead to obstructions, so it's a good idea to get a medical evaluation.

3. Some newer surgical techniques involve placing a protective fabric or barrier inside the abdomen to help reduce the formation of adhesions. It might be worth asking your surgeon if this was used in your case and whether any imaging or tests are needed.

4. The general advice is to keep track of when and how often this sensation occurs, along with the level of pain. Then, discuss these symptoms with a surgeon, gastroenterologist, or specialized ostomy nurse to rule out any complications and consider possible treatments.
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