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Jan 11, 2017

Struggling with Mucus Plug Post-Ileostomy and Seeking Advice

This topic is about someone who is dealing with complications after having a temporary loop ileostomy. They are experiencing issues with rectal mucus plugs, anal stenosis, and fissures, and are concerned about the risk of sepsis. They are seeking advice on safe relief methods and recommendations for surgeons who can help with their condition.

Here are some key points and advice shared in the discussion:

1. The person is five weeks post-surgery and feels a strong urge to pass material rectally but is hindered by severe anal stenosis and a chronic, deep anal fissure.

2. They have tried using enemas with a warm filtered water and coconut oil mix, but this only releases loose mucus, leaving a suspected dried mucus plug.

3. A previous attempt to pass the plug resulted in heavy bleeding, a high fever, rapid heartbeat, and a 24-hour septic episode.

4. The hospital advised continuing enemas at home but refused to perform a colonoscopy to remove the plug.

5. The person is worried about the risk of further sepsis, which they believe could be life-threatening.

6. Their long-term goal is to have an end colostomy with the removal of the lower colon and rectum, as they feel the rectum is beyond repair.

7. If Australian colorectal surgeons are unwilling to perform the surgery, they are open to traveling overseas to find a more supportive surgeon.

8. They cannot afford the site's paid membership, which limits their ability to privately message for surgeon details.

9. They are currently consulting two bulk-billing colorectal surgeons but are still searching for one willing to perform an end colostomy.

10. Repeated enemas and straining can lead to complications like large parastomal hernias. One member shared that they needed weekly enemas until their rectal stump was surgically removed.

11. It might be helpful to discuss the possibility of rectal-stump or rectum removal with experienced colorectal surgeons, as this has resolved similar issues for others.

12. Recommendations for surgeons in New South Wales, Australia, include:
- Dr. Jodie Ellis-Clark in Penrith, who operates at Nepean Hospital and performed the original colostomy and hernia repairs.
- Dr. Brian Dragonic, who practices on the grounds of John Hunter Hospital in Newcastle and has been highly recommended by a general practitioner.
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