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Feb 02, 2017

Staying Positive with a Permanent Ileostomy

This topic is about staying positive while living with a permanent ileostomy. The person sharing their experience has had an ileostomy since 2010, which became permanent in 2012 due to complications. They generally managed well, but recently, they have been feeling down and frustrated about having the ostomy for life. Usually, they are upbeat and find it easy to forget about the appliance when life is going well. However, when other areas like work, study, or family become stressful, the ostomy feels like an added burden. They acknowledge that the ileostomy saved their life and are seeking ways to handle emotional lows from others who have similar experiences.

Here are some helpful insights and advice:

1. Remember that the ostomy is just one part of who you are. Don't let it define you; instead, embrace it as part of your life.

2. It's normal to experience emotional ups and downs. Most people with an ostomy go through this until they adjust. Accept that the appliance is necessary and focus on living a normal life within its routine.

3. Leaks or product failures can be major triggers for feeling low. Reducing these incidents can help minimize stress.

4. Engage in creative outlets like writing poetry or other personal hobbies to help process your emotions.

5. Visit support forums whenever you feel overwhelmed. Shared experiences can remind you that you're not alone and often provide practical tips.

6. Try to identify what specifically is bringing you down so you can address it if it happens again.

7. Consider telling close friends about your ostomy. Good friends will be understanding, and it can remove any awkwardness, such as during bathroom use or if unexpected stoma noises occur.
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