This topic is about the experiences and challenges faced by someone who is dealing with a colostomy reversal complicated by parastomal and incisional hernias. The person is also managing weight gain and has had their reversal surgery postponed due to a new breast cancer diagnosis. Here are some insights and advice shared by others who have been in similar situations:

- Avoid further strain and heavy lifting. Many people emphasize that over-exertion can worsen hernias or cause new ones. It's suggested to set a personal weight limit, like no more than 5 pounds or 2 kilograms, until the hernias are repaired.

- Use external support and choose the style carefully. Elasticated belts can help hold hernias in place and reduce discomfort. The CUI Velcro-wrap hernia belt is recommended for its adjustability, while one-piece panty-style girdles may lose their fit quickly. Spanx or panty girdles can be effective but might be inconvenient for bathroom use. Some people add a lumbar back-brace over the CUI belt for extra support. A stoma nurse or surgeon can prescribe a medical-grade hernia belt, and it's helpful to bring specific brand and product codes if needed.

- Consider DIY or custom devices for parastomal support. One person created an aluminum plate with a stoma-sized hole, using Dansac elasticated waistbands for anchoring. They added a soft Salts Stoma Collar to prevent edge trauma, claiming it stopped further hernia enlargement even during heavy activity.

- Be aware of mixed results with mesh repair. Some have had mesh reinforcements, but experiences vary. One person developed a new hernia within two months, while another needed extensive repairs and experienced pain for months. It's important to discuss suture versus mesh options with a specialist.

- Consider scar-tissue and keloid formation. Dense adhesions can slow healing and complicate future surgeries. If you form keloids easily, inform your surgeon.

- Watch for infections, as persistent drainage is not normal. A continually leaking stoma scar could indicate an undiagnosed infection, like an MRSA abscess. Insist on cultures if you notice drainage, fever, or a new painful lump.

- Seek second opinions and specialist centers if needed. If local surgeons are hesitant due to cardiac risk, BMI, or complexity, consider consulting higher-volume colorectal teams. Some have had positive experiences with specific hospitals and doctors.

- Focus on weight control and exercise while managing hernias. Engage in gentle, low-impact activities like walking, seated pedaling, or water-based exercises with medical clearance. Avoid core-strength moves, sit-ups, planks, and heavy resistance work until after surgical repair and clearance from a knowledgeable physiotherapist.

- Cope emotionally and practically. Long delays, conflicting medical advice, and visible bulges can be frustrating. Many find it helpful to share their experiences within the ostomy community. Keeping a log of symptoms, photos of hernia growth, and questions for consultations can be empowering. Take control of ordering your own supplies if clinicians are unfamiliar.

Manufacturers and brands mentioned include Salts, Dansac, CUI, and Spanx.