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Feb 13, 2017

Small Bowel Series Test Concerns with Ileostomy and MS

This topic revolves around a person who is facing a challenging medical situation. They are scheduled for a small-bowel series, a type of imaging test, due to recurring bowel obstructions after emergency surgery. The doctors suspect these obstructions might be happening in the same spot and want to see if surgery could fix it. However, the person has several health issues that make this situation more complicated and worrisome.

Here are some key points and concerns they have:

- They have multiple health conditions, including an ileostomy, diabetes, moderate-to-severe kidney disease, anemia, low body weight, and multiple sclerosis (MS), which affects their mobility.
- Managing their diet is difficult because they receive conflicting advice from nutritionists, and trial and error hasn't helped identify which foods might be causing problems.
- They are particularly worried about the test because:
1. They experience severe nausea with any drink, so they fear they might vomit the barium solution needed for the test.
2. Before having an ostomy, they couldn't retain barium during a colon X-ray. Now, they worry that the barium might flow out too quickly, potentially overfilling or bursting the ileostomy pouch, or causing leaks that could irritate the skin around the stoma.
3. Their limited mobility due to MS might make it difficult to reach a wheelchair-accessible bathroom in time to empty or change the pouch during the procedure.

The person is seeking advice from others who might have faced similar challenges.

In a follow-up, they mentioned that they canceled the test after discussing with their surgeon. The surgeon explained that any kink found would likely be due to adhesions or scar tissue, and surgery to correct it might create more adhesions, making the benefits uncertain.

One person shared their experience of having an ileostomy and dealing with blockages caused by scar tissue, which sometimes still happen with certain foods like popcorn and carrots. They suggested trying alternative fluids like green tea or Gatorade (avoiding the red kind) if plain water is hard to tolerate.
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