This topic is about someone who has been experiencing pain and a lump behind their stoma after having their bladder removed. This situation has become quite uncomfortable, with the pain becoming sharp and intense, especially when they cough, sneeze, stand, or move. Although a stoma nurse mentioned that surgery might be needed, there hasn't been any clear follow-up or plan provided. The person is looking for advice and clarification on what to do next.

Here are some helpful insights and advice:

1. Experiencing pain and noticing a lump in this situation is not normal and should be checked by a doctor as soon as possible. It's best to see a colorectal or urological surgeon who has experience with stomas.

2. While stoma nurses are a great first point of contact, they are not the ones to make a final diagnosis or recommend surgery. It's important to get a thorough assessment from a doctor.

3. If you feel that your current healthcare provider isn't addressing your concerns adequately, consider seeking a second opinion. You can do this within the NHS by asking for a referral to another specialist, or you might choose to see someone privately.

4. If the response from the nurse or healthcare provider is still not satisfactory, you can escalate your concerns through hospital administration or patient-relations channels. Proper diagnosis might require imaging tests to rule out issues like a parastomal hernia or other complications after surgery.

5. Don't wait to seek medical care. Early intervention can help prevent any potential hernia or other complications from getting worse.