This topic is about the emotional journey of adjusting to life after a total colectomy and permanent ileostomy. The originator shares their personal story of dealing with ulcerative colitis from a young age, which eventually led to colon cancer. Due to the severity of their condition, they underwent surgery to remove their entire large intestine and initially had a J-pouch. However, complications like abscesses and fistulas required further surgeries, leading to muscle weakness and nighttime incontinence. Ultimately, they decided on a permanent ileostomy, which they describe as the best decision of their life. Despite this, they experienced a deep sense of loss for their colon and wondered if others felt the same. They encourage others to stay positive and embrace life with laughter and love.

Here are some pieces of advice and insights shared by others:

1. Many people in the community understand and share similar physical and emotional challenges. The forum is a place where you can find understanding and support.

2. Staying positive is important. Embracing a mindset of living, laughing, and loving can help maintain hope and happiness.

3. Engaging with the community can be beneficial. Participating in discussions, such as visiting the general chat room and posting regularly, can provide support to both the poster and others who may be reading silently.