This topic is about colostomy irrigation, a method that can potentially replace wearing pouches all day for those with a colostomy. The person sharing their experience had a permanent colostomy and finished chemotherapy, and they are curious why this option isn't discussed more often by healthcare professionals. They are dealing with challenges like unpredictable stool output and appliance failures, which have affected their daily life and work plans. Here are some insights and advice shared by others:
- **Medical Awareness**
- Colostomy irrigation is not commonly mentioned by surgeons and nurses, so patients often need to ask about it and request training.
- **Timing & Contraindications**
- It's best to wait until after chemotherapy and when the bowel has healed to start irrigation. This can be anywhere from 6 to 12 months post-operation. Note that irrigation is suitable only for colostomies, not ileostomies.
- **Learning Curve & Frequency**
- It may take 4 to 8 weeks for the bowel to settle into a predictable pattern. Most people irrigate every 24 hours, though some manage 48-hour intervals. Factors like a parastomal hernia or slow transit might require more frequent irrigation.
- **Session Length & Sleeve Time**
- The process of getting water in and evacuating usually takes 30 to 60 minutes. Some people keep the sleeve on for an additional hour to manage any late output. Once comfortable, many switch to a small stoma cap or other minimal coverings for the rest of the day.
- **Cost-Saving Tips**
- Irrigation can be more economical than using bags. Consider re-washing irrigation sleeves and using long-life flanges or baseplates. Some products, like Hollister peel-and-stick caps, are cost-effective and can last a couple of days.
- **Product Suggestions & Fixes**
- Recommended products include Coloplast and Dansac irrigation sleeves, Hollister caps, and Convatec stoma collars for skin protection. For odor and gas management, options include Convatec Diamond sachets, Devrom internal deodorant, and vented caps or plugs.
- **Output Consistency & Diet**
- To thicken output before irrigating, consider using Imodium or similar products. A high-protein, low-residue, or low-carbohydrate diet can help reduce output volume.
- **Practical Routines**
- Many people find it helpful to irrigate in the evening to ensure the next workday is free from output. Keeping busy with a book or phone during the session can make the time more productive. Having a belt handy can be useful if the sleeve needs to stay on while moving around.
- **Psychological & Lifestyle Support**
- Irrigation can significantly reduce anxiety about leaks, odor, and toilet access, and many long-time users find it life-changing. Patience and persistence are key, and creative outlets like journaling or art can help manage the emotional aspects of living with a stoma.
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