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Nov 08, 2017

Seeking Advice for Broken Sleep Due to Frequent Bag Emptying

This topic is about finding ways to improve sleep for those who have to frequently empty their ostomy bags at night. The person sharing their experience is struggling with broken sleep and fatigue due to getting up multiple times each night. They are seeking advice from others who might have faced similar challenges. Here are some suggestions and insights shared by the community:

1. Identify your stoma type:
- If you have an ileostomy, track how long it takes for food or drink to become output. Many people notice about a 5-hour transit time.
- For a urostomy, consider using an overnight drainage bag to collect urine continuously, which can help you avoid getting up.

2. Adjust meal size and timing:
- Try having your main meal at lunch, a smaller and earlier dinner, and avoid late-night snacks. A heavy or late dinner can increase night-time output.
- Some people find it helpful to record the hours between eating and emptying, then time their last meal so that output slows during sleep.

3. Control output consistency:
- Over-the-counter loperamide (Imodium) can help thicken ileostomy output, reducing both volume and frequency.

4. Consider irrigation (for colostomy only):
- Colostomy irrigation can flush the remaining colon, preventing stool production for many hours, allowing for uninterrupted sleep.
- Note that irrigation is not effective or recommended for ileostomies.

5. Explore equipment options:
- A larger pouch at night can hold more, but some find the added weight still wakes them. It's important to balance capacity with comfort.
- Use a mattress protector for the rare leak.
- Some people set automatic alarms (e.g., 1 AM and 4:30 AM) to empty the pouch proactively before it over-fills.
- Sleeping on a slight incline (using four pillows, for example) can help keep output away from the pouch filter and reduce ballooning.
- For gas build-up, "burp" the pouch to let the air out and ensure it is re-sealed before going back to sleep.

6. Practice sleep-hygiene and coping strategies:
- Techniques like relaxation, mindful meditation recordings, gentle foot massage or reflexology, and focusing on gratitude can help you fall back to sleep quickly.
- Some people use prescription aids like Lorazepam or over-the-counter melatonin to limit night-time anxiety and improve sleep continuity, but always under medical guidance.

7. Adjust your attitude and expectations:
- Nightly emptying one to three times is common, especially in the early months. Many find their output schedule stabilizes over time.
- Accepting that one or two brief bathroom trips may remain part of life, and returning to bed calmly, can help lessen the perceived sleep loss.
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