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Nov 20, 2017

Seeking Advice on Recurring Colostomy and Bladder Issues

This topic is about someone who has been experiencing recurring health issues after undergoing a colostomy and bladder removal. They are seeking advice and support from a Wound/Ostomy/Continence Nurse (WOCN) but are facing financial constraints. Here’s a breakdown of their situation and some helpful advice:

- The individual had a colostomy in April 2015 and initially did well. However, after moving from Arizona to Colorado, they began experiencing severe bladder spasms, which felt like contraction-like pain.
- A supra-pubic catheter was inserted, but the spasms worsened. After extensive testing, a urologist diagnosed them with a neurogenic bladder, which was underdeveloped due to a pre-existing disability.
- The irritation from indwelling catheters led to the surgical removal of the bladder.
- Since the surgery, they have been experiencing a recurring cycle every few months that includes a runny yet congested nose, rapid onset nausea leading to vomiting, and body spasms that force liquid stool out of the rectum despite having a colostomy.
- They are unsure what triggers these episodes or how to stop them and are struggling to find an affordable WOCN for guidance and emotional support.

Here are some pieces of advice and insights that might help:

1. Search existing discussions:
- Explore the forum’s “COLLECTIONS” section under “OSTOMY-RELATED COMPLICATIONS” for threads on rectal discharge and similar issues. These may offer practical tips.
- Engaging with older posts and opting for notifications can help reconnect with others who have faced similar problems.

2. Clarify surgical details with your colorectal surgeon:
- Understand which parts of the colon and rectum were left intact during your colostomy. A residual rectum can secrete mucus or blood, causing cramping or explosive discharge, but it should not produce feces.
- If stool-like output persists from the anus, it may indicate an anastomotic leak, fistula, or other complications that need evaluation.

3. Different ostomies, different expectations:
- After an ileostomy, where the entire colon is removed, no stool should pass rectally.
- After many colostomies, part of the colon or rectum is retained, making mucus discharges common and occasional clots possible. Knowing your surgery type helps interpret symptoms.

4. Pursue specialist follow-up:
- Request a referral to a WOCN or colorectal clinic. They can teach symptom tracking, stoma management, and identify red-flag signs that require imaging or endoscopy.
See full discusison
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