Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,403 members
Dec 22, 2017

Looking for Active J-pouchers on this Site

This topic is about someone who has a J-pouch and is looking for an active community to connect with on the "MeetAnOstomate" website. After having a J-pouch surgery in November 2017, they feel a bit distanced from the main focus of the site, which is primarily about ostomies. Although there is a section for J-pouch and ostomy reversal discussions, it doesn't seem very active. They are considering joining a more specialized site like jpouch.org but still value the friendships and support they've found on "MeetAnOstomate." They plan to check in occasionally to help others.

Here are some helpful insights and advice shared in the discussion:

1. Community encouragement: Many members encourage staying active on "MeetAnOstomate," highlighting that even silent readers benefit from the discussions.

2. Experience of a non-reversed J-pouch: One member shared their experience of having a J-pouch that couldn't be connected due to leaks. They kept their ileostomy but still experienced some leakage. Despite these challenges, their quality of life improved over six years.

3. Long-term J-pouch management tips from a 21-year user:
- Expect about eight bowel movements in 24 hours; plan for toilet access during outdoor activities.
- Maintain a varied diet and chew food thoroughly. Larger food volumes can increase pouch activity, and too much chocolate may cause diarrhea.
- Loperamide can help control output; taking 2 tablets with breakfast and 2 with dinner is suggested.

4. Alternative support resources: While jpouch.org is a dedicated site for J-pouch support, "MeetAnOstomate" remains valuable for its broad ostomy experience and supportive community.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,403 members.

“I mostly read and still feel like I belong.”

“Doctors took notes; they want others to find this website.”

“From midnight blowouts to big wins, there’s always a hand to hold.”

Join Free

Popular Topics

David Letterman's Top 10
Inquiring minds want to know
Minimalist - Journey to Less Is More Quest
MY Ostomy/MAO Theme Song
Hollister Drainable Pouch: How to Open the Lock and Roll Closure?
I'm Home from Surgery and Feeling Great, but My Mom's Reactions Are Tough
A NEW WORD FOR ME
Ileostomy Reversal
The elusive stoma nurse
Attn: Newbies……Ahhhh - A Naked Shower

New Topics

Anyone Else with a K Pouch?
More updates from Sweden
THE ELEPHANT STAMPEDE
Complications
Happy Fall!
Deciding to Keep My Colostomy: My Personal Journey
OPEN MINDS
Seeking Support for First Family Gathering Post-Surgery
Antibiotics and Ostomies: Seeking Advice and Experiences
How do you clean the end of your drainable bag?
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑