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Jan 05, 2018

Colostomy Reversal - Healing Process and Experiences?

This topic is about the experiences and expectations of someone who is preparing for a colostomy reversal after living with an ostomy for seven years. The person is excited but also anxious about the changes and challenges that might come with the reversal. Here are some insights and advice shared by others who have gone through similar experiences:

1. Temporary Ileostomy: The surgeon plans to use a temporary ileostomy for about six weeks to allow the new connection to heal properly.

2. Current Sensations: After a recent endoscopy, the person is experiencing increased urgency and is often rushing to the bathroom.

3. Appointment: The person is traveling to New Orleans in severe weather to schedule the surgery and is asking for support and prayers.

4. Donation: Once the reversal is complete, the person plans to donate any unused ostomy supplies.

Advice and Insights:

- General Recovery Pattern:
- The first few weeks can feel like learning to be "toilet-trained" again. It's helpful to stay close to a bathroom initially.
- Expect some frequency and urgency at first, but most people notice gradual improvement over time.

- Positive Outcomes Shared:
- Some people report quick recovery, with bowel function returning within a day or two and no complications.
- Others have returned to their usual routines within weeks and are happy with the decision to reverse.

- Less Rosy Experiences:
- Some individuals with more complex cases, such as significant rectal loss, experience ongoing issues like constipation and nerve pain.
- The outcome can vary depending on how much of the rectum or colon remains and the height of the reconnection.

- Tips for Early Success:
- Stay positive, as bowel patterns usually settle over time.
- Use stool softeners or gentle laxatives if constipation is an issue.
- Keep a bathroom log to track patterns and identify helpful or problematic foods.
- Practice pelvic-floor exercises to help with gas control.

- Emotional and Practical Support:
- Support groups, like the United Ostomy Associations of America, offer valuable advice and reassurance.
- A recommended surgeon in Minnesota is praised for successful reversals.

- Reassurance for Those Awaiting Reversal:
- Many who feared frequent bathroom trips now report normal or near-normal routines.
- Accidents are rare when bowel length and sphincter strength are adequate.
- It's important to maintain realistic expectations and aim for a "new normal" rather than perfection.
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