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Mar 05, 2018

Ileostomy Complications and Seeking Support in Edinburgh

This topic is about a mother seeking advice and support for her 10-year-old daughter, who had an ileostomy at age 8 and is now experiencing rectal bleeding and pain. The child has been diagnosed with proctitis, and the mother is looking for treatment advice and support groups in Edinburgh.

Here are some helpful insights and advice:

1. It's not uncommon for children with an ileostomy who still have their rectum to experience mild mucus or occasional blood. However, persistent pain and bright-red bleeding are concerning, and if the current treatment isn't working, it's wise to seek a second medical opinion.

2. Understanding whether the underlying condition is Ulcerative Colitis or Crohn’s Disease is important, as treatments can vary. Pentasa suppositories are typically used for Ulcerative Colitis.

3. If Pentasa isn't effective, there are other options:
- Uceris (budesonide) rectal foam has been beneficial for some when suppositories don't work.
- Liquid steroid enemas might be another option, though they can be challenging to retain.

4. If medical treatments do not resolve the inflammation and bleeding, surgical removal of the remaining rectum might be necessary.

5. Ongoing leakage from the rectal stump should be addressed, as it can indicate active inflammatory bowel disease (IBD).

6. For support, the Colostomy UK website provides resources for ostomates, including information on local support groups. This can be a useful tool to find or establish a child-friendly support group in the Edinburgh area.
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