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Jul 07, 2018

Need advice - Keep current situation or opt for colostomy?

This topic revolves around a difficult decision faced by someone who has experienced rectal prolapse repair, which unfortunately resulted in damage to the rectum. After undergoing several procedures, including a temporary ileostomy, they are now dealing with complete bowel incontinence. The choice they face is whether to continue managing with pads or to opt for a permanent colostomy. They are seeking advice from others who have been in similar situations.

Here are some insights and advice shared by others:

1. Many people who have dealt with long-term fecal incontinence or rectal prolapse have found that choosing a colostomy is much easier to manage than dealing with constant accidents and pain. One person mentioned that using pads often led to leaks and embarrassment, while the colostomy resolved these issues.

2. Colostomy irrigation can help by providing predictable emptying, allowing for more freedom during the day without worrying about unexpected output.

3. Chronic pain from prolapse can be debilitating, and resolving it through a colostomy can significantly improve one's quality of life and mental clarity.

4. A person with Crohn’s disease, whose anal sphincter failed, shared that having an ostomy completely changed their life for the better. However, they advised that if the condition is not life-threatening, it is okay to take time to become mentally prepared for the change.

5. Failed prolapse repairs are not uncommon, and even if another repair is an option, keeping the colostomy might prevent recurrence and ongoing pain.

6. Someone with Ehlers-Danlos syndrome and rectal prolapse reported regaining weight, mobility, and the ability to enjoy dining out after receiving a colostomy eight years ago.

7. The general consensus is that if you find yourself regularly relying on Depends, it might be time to consider a colostomy. However, this decision should be made with careful consideration and discussions with close supporters and healthcare providers.
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