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Sep 15, 2018

3 Days Post-Ileostomy - Recovery Updates and Medical Mystery

This topic is about someone who is three days into their recovery after having an ileostomy, which is a type of surgery where the small intestine is diverted through an opening in the abdomen. This person had a complex surgery that took longer than expected and involved removing the colon and some other procedures due to an unusual diagnosis related to a genetic condition. Here’s a look at their early recovery journey and some helpful advice for anyone in a similar situation:

- The surgery was supposed to last 3 hours but ended up taking 7 hours. It involved a total colectomy and some additional procedures due to a unique diagnosis involving numerous small polyps.
- After surgery, they experienced severe pain despite receiving a regional pain blocker, requiring high-dose ketamine for relief.
- Their stomach was slow to start functioning again, leading to severe acid reflux, and their stoma was inactive for a bit longer than usual.
- By the third night, the stoma, affectionately named "Willy," began making loud gurgling noises, and they were able to walk around several times a day, which was praised as a good sign of recovery.
- They lost their prescription glasses during the hospital stay but received a replacement pair, which was important given their significant vision impairment.
- They managed to eat chicken noodle soup, marking their first non-liquid food intake.
- Preliminary pathology results showed no signs of cancer, which is reassuring news.

Looking ahead to going home, here are some pieces of advice and insights:

1. Take your time with recovery. The first few weeks at home can be tough without the constant support of hospital staff, so rest as needed.
2. Hospital stays can be exhausting due to interruptions and noise. Expect to get more sleep at home, but be prepared for any remaining medical equipment to still be a challenge.
3. It’s normal for the stoma to take time to start working properly, and it might make loud noises. Walking and gentle activity can help speed up recovery, but always follow your surgeon’s guidelines.
4. Don’t worry about the loud stoma noises; most people will just think it’s your stomach. Some find it fun to name their stoma and blame the sounds on it.
5. Keep an eye on your hydration and electrolyte levels, as some people need extra support after leaving the hospital.
6. Celebrate small victories, keep a positive attitude, and use humor to lift your spirits. Just be careful with laughing too hard if you have stitches.
7. Remember, there’s a community of people who have been through similar experiences and are there to support you if you have questions or just need to talk.
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