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Sep 15, 2018

Seeking Advice - Persistent Dizziness, Tingling, and Ringing Post-Ileostomy

This topic is about someone who, three months after having an ileostomy, is experiencing persistent dizziness, tingling in the hands, and ringing in the ears. Despite consulting various specialists and trying different therapies, these symptoms continue to affect daily life. The person is reaching out for advice and shared experiences from others who might have faced similar issues.

Here are some insights and suggestions that might be helpful:

1. Consider medication-related causes:
- The symptoms might resemble side effects from chemotherapy. It's a good idea to review any recent or new medications, especially if they include chemotherapy, immunotherapy, or drugs with chelated metals.
- One person found relief by stopping all medications and increasing their exercise routine.

2. Check for neuropathy and metabolic issues:
- Neuropathy from chemotherapy can cause dizziness, tingling, and tinnitus, but these symptoms often improve over time.
- Testing for diabetes or pre-diabetes is important, as diabetic neuropathy can mimic the effects of chemotherapy-induced neuropathy.
- Consider evaluating for arachnoiditis, a nerve-sheath disorder that can sometimes occur after abdominal surgery.

3. Look into vitamin levels:
- It's important to check serum B12 levels, as an ileostomy can affect absorption, and a deficiency might cause these symptoms.
- Be cautious with high doses of B12 or B6, as they can worsen neuropathy and cause other issues like severe dry eyes. One person experienced improvement after stopping these supplements.

4. Improve circulation and consider lifestyle changes:
- Regular walking can help improve circulation and flexibility, which might reduce dizziness and tingling.
- Increasing fluid intake and using surgical compression stockings could help with dizziness.
- Using a walking pole might provide stability during dizzy spells.

5. Review other potential factors:
- Sensitivity to cold and anxiety were mentioned as possible contributors to these symptoms. It might be helpful to discuss these with healthcare providers.
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