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Oct 08, 2018

Desperate for Help - Urgent Ileostomy Hernia Surgery Delayed - Seeking Advice

This topic is about someone who is dealing with a very large and painful parastomal hernia that developed after their ileostomy surgery. Unfortunately, their surgery to fix this issue has been delayed for over a year, leaving them in constant pain and mostly confined to their home. They are looking for advice on how to get faster treatment or challenge the decision.

Here are some suggestions and insights that might help:

1. Visit an Accident & Emergency (A&E) or hospital emergency department right away. The severe pain, size of the hernia, and leakage might be considered an emergency, which could lead to a quicker surgical review.

2. Consider having a private consultation, even if it's just for a second opinion. A detailed assessment and formal report from a private doctor might be harder for the NHS to overlook.

3. File an official complaint with the NHS trust. This will document the urgency of your situation and your dissatisfaction with the current care, potentially adding pressure for faster action.

4. Explore the possibility of going private or seeking treatment abroad, such as in France, where costs might be lower, wait times shorter, and facilities possibly cleaner.

5. Keep gathering information and looking into alternative options. An independent specialist opinion could provide more choices and strengthen any appeal you might make.
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