Hi, I have an extremely large, heavy, painful stoma hernia (2nd one in 2 years). My GP contacted a surgeon stating he advises urgent surgery. The surgeon says (without seeing me) I have to wait 12+ months. I almost have to "carry" my hernia around, suffer excruciating pain, and constant leaks. I'm virtually housebound and desperate. Can anyone advise me how to seek help/who to appeal to, please? Thanks

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Ostomy surgery is stressful both for the patient and the caregiver, and creates a major life change for both people in a relationship.
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We sat down with two influential people in the ostomy community, to find out how they cope during challenging times.
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