This topic explores the difference between forming friendships and having simple associations within the ostomy community. After receiving a colostomy in 2015 and joining an online community in 2016, the originator found that online discussions often cover topics that are rarely discussed in local support groups. Initially, they only confided in a long-time friend, as family conversations felt too uncomfortable. They observed that kindness and cruelty can be found everywhere, both inside and outside the ostomy circles, and they encourage members to seek genuine friendships while understanding that some connections will remain casual.

Here are some helpful insights and advice:

1. Many members find that online forums provide more practical information and emotional support than local in-person groups. Participants freely share both their struggles and successes.

2. Consider attending local support meetings and starting open conversations on topics that are often ignored. Ostomates themselves can lead or teach sessions, as few official speakers actually wear an appliance.

3. Only those living with an ostomy fully understand the experience, so peer communities offer unmatched empathy and understanding.

4. It’s normal to have ups and downs. Being honest about bad days helps foster real connections and reduces feelings of isolation.

5. Perspectives change when non-ostomates become ostomates. Attitudes often shift toward greater compassion and solidarity.