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41,452 members
Feb 01, 2010

Adjusting to Life with an Ostomy and Seeking Support

This topic is about adjusting to life with a new ostomy, dealing with complications from a fistula, and managing the fear of bag leaks. A 39-year-old man from upstate New York is navigating these challenges after receiving an unexpected ostomy due to a surgical complication. Here are some helpful insights and advice for anyone in a similar situation:

1. Bag failures are rare, and most issues arise from improper application.
- Always double-check the seal and fit of your pouch. With practice, this will become routine.
- When going out, carry spare pouches, wafers, and a change of clothes to reduce anxiety.

2. If you experience true "breakage" or material failure, consider trying different pouching systems or brands. A different product might solve the problem.

3. For those with high-output ileostomies, dietary adjustments can help:
- Limit black coffee, as it can significantly increase liquid output.
- Foods like mashed potatoes, marshmallows, and rice can help thicken stool and slow output.

4. Night-time or situational leaks are common, but planning ahead can make them manageable.

5. Remember that your stoma is keeping you alive. Accept it and don't let it limit your freedom. Many people with ostomies continue to work, travel, drive trucks, and even handle security jobs.

6. Seek support from forums and communities that offer 24/7 moral support, shared experiences, and humor. This can help you feel less isolated.

By following these tips and seeking support, you can better manage life with an ostomy and regain confidence in your daily activities.
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