January after 5 years and a prior attempt that was unsuccessful due to the surgeon finding everything inflamed… my Crohn's was active, and I had no clue. Prior scans and blood work showed all was normal. Connected the small intestine to the rectum. It's been a learning curve. Something not used for 5 years is now performing double duty. I have urgency under control, but I still leave folded ...

I'd just like to get on a soapbox for a minute. I would like to encourage anyone and everyone who has an issue with their product (leakage, whatever) to please get the lot number and report it to the company. I think a lot of us have come to believe that all products will have issues, and why bother. But it is important, for you and for others. I recently had an issue with a Hollister bag, and ...

Hi everyone, it's been a while! Hope everyone is doing well! I'm just checking in. So it's been a full year since my colostomy reversal, so I thought I'd share what's been going on for those who are interested. I still have pain when I apply pressure to the stoma site, but only when I press on it and where the hernia repair was done. I still have rectal pain that feels like a stabbing or shoot ...

It's painful only when I move…. If I hold still, I'm okay. It turns out the Brava sheets were leaving bruises. So glad I have revision surgery next Friday! Let's hope it's a GOOD Good Friday for all involved!

Just saw this mentioned in someone's reply to a question. Had never heard of a "plug". It sounds like it would be advantageous for intimacy.
Comments?

Today I was given a barium enema to test for reconnection. Everything looks great, so we will be proceeding in May. However, since I came home, I've been passing what feels like bowel movements. It's mostly the solution, but I feel like there was some bowel in there too. If I'm still doing this tomorrow, I'll be contacting my doctor. Has anyone else experienced this?

I have double ostomies. I started pole a year ago, and I've just started aerial. For 16 years, I did nothing. I'm due for my 35th operation in October, but I'm not allowing it to stop me anymore. Thank you to those who believe in me every day, even though I don't. I'm so lucky to have a supportive partner who also has an ileostomy. Be bold, believe, and fly

Tomorrow marks one year since I had emergency surgery due to a perforation in my colon and got my colostomy. For several months, I was angry, resentful, overwhelmed, bitter, and depressed. I didn't think I would ever be able to cope with my new normal. I blamed myself. I don't remember how I found this group, but I am so grateful I did. You all helped to ease my loneliness and gave me support ...

Hi Guys,

New here. I've had one question on my mind that I've been unable to find any answers on. In November I was finally relieved from Ulcerative Colitis after failing a few medications and throwing in the towel. I went into surgery explicitly wanting the bag and the bag I did come out with (loop ileostomy with a constructed j pouch, step 2). My surgeon is already pushing me to finish up ...

I was wondering, my former ostomy nurse told me that I need a lot of protein with an ostomy. So every once in a while, I use protein powder in a shake. I also eat Quest Protein chips about once a week. The spicy ones aren't bad. I do not really eat red meat. Sometimes I eat chicken, but it doesn't digest very well, so I don't know how much is absorbed. I was just wondering what others here do ...

The adventure continues.
As I posted previously, retaining a rectal stump long term causes trouble.
A recap: Last December, about 2 years post-op, my rectal stump became inflamed and began bleeding. This, of course, freaked me out a little. Blood discharging... where it should not. I consulted with my most excellent gastroenterologist. He didn't share the concern I had. He examined my stump wi ...