Finally Reconnected After 5 Years with Crohn's

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2
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606
baltimorewill
May 03, 2025 2:37 pm

January after 5 years and a prior attempt that was unsuccessful due to the surgeon finding everything inflamed… my Crohn's was active, and I had no clue. Prior scans and blood work showed all was normal. Connected the small intestine to the rectum. It's been a learning curve. Something not used for 5 years is now performing double duty. I have urgency under control, but I still leave folded tissue in the crack after finishing. After the failed first attempt to reconnect, they started me on Rinvoq.

Keep your chin up, and your hopes up… a reversal is possible…

Axl
May 03, 2025 10:11 pm

Good for you, I wish you well.

Morning glory
May 03, 2025 10:23 pm

Good news. Happy for you.

Posted by: h2893535

I’ve only been on this site a little bit, I hardly know how to navigate it, LOL! I just want to say that everyone seems so kind and supportive to each of the members and it’s not only helpful, it makes me happy that there really are so many nice people in this world that can sometimes feel so bleak and cold. I didn’t even know about this site until I found it by accident. I think the hospital staff should bring it to their patients’ attention. Thanks to all, even if you’re just listening!