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May 03, 2025

Finally Reconnected After 5 Years with Crohn's

This topic is about someone who has successfully undergone reconnection surgery after living with a stoma for five years due to Crohn’s disease. The surgery reconnected their small intestine to the rectum, marking a significant milestone in their journey. Here are some key points from their experience:

1. The individual had a previous unsuccessful attempt at reconnection surgery because the surgeon discovered unexpected active Crohn’s inflammation, despite normal scans and blood tests.

2. After the failed attempt, they began treatment with Rinvoq (upadacitinib), which likely helped manage their condition.

3. Adjusting to life post-reconnection has been a learning experience. While urgency is now under control, they still use folded tissue between the buttocks after bowel movements for added comfort and cleanliness.

4. The main takeaway from their story is one of encouragement: reversals are possible, and it's important to stay hopeful and positive.
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