It's been 10 days since my ileostomy reversal - thirteen months after cancer surgery. I'm in the throes of agony dealing with ULARS (ultra low anterior resection syndrome) which I hadn't heard of until last week. Not one person in my medical team ever mentioned there would be anything more than some incontinence, frequency, and urgency issues - all of which go away. I've learned differently. Especially with an ultra low anastomosis like mine (2.5 cm), the symptoms will likely never go away and, even if they do, it takes years to achieve even a small amount of progress. I'm 64 and don't want to take that time. As soon as I can, I'm booking surgery for a permanent colostomy which will give me back my freedom. No poopy pants and no pain!
Past Member
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 33,635 members. Get inside and you will see.
It's not all about ostomy. Everything is being discussed.
Many come here for advice or to give advice 🗣, others have found good friends 🤗, and there are also those who have found love 💓. Most of all, people are honest and truly care.
Privacy is very important - the website has many features that are only visible to members.
Create an account and you will be amazed.
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Hollister
Ostomy surgery is stressful both for the patient and the caregiver, and creates a major life change for both people in a relationship.
Learn how to care for your loved one, while still taking care of yourself.
Learn how to care for your loved one, while still taking care of yourself.
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Hollister
Your stoma care nurse can be a valuable resource when you need help.
Learn about the common issues and symptoms that warrant a call for assistance.
Learn about the common issues and symptoms that warrant a call for assistance.