So, now we’ve reached one of those topics I might not have the easiest time discussing, but I’m going to try, because, after all, this is still a huge thing when you have an ostomy.
As I’ve written before, having an ostomy causes no limitations p...
A sincere happy International Women's Day...
Thought this might be the appropriate day to voice
the disturbing, yet not surprising, frequency of
women's experiences with dating (with an ostomy)
compared to that of men's. It's more than
unfortunate that almost exclusively women have
faced the "oh you have an ostomy?.... is that what
I think it.... umm... ok, i'll call you...
maybe...
It is this time of the year again. I have no
family therefore I am not looking forward to
Christmas Holidays. If you are interested in
spending Christmas holidays in Phoenix, AZ then
reach out to me. I have a spare bedroom with queen
size bed and bathroom. Must love outdoors and my 2
small lap dogs.
I am also considering Maui. If interested to join,
reach out. If you know of 55+ singles tours ...
Some of you know that in 2018 I left my abusive
spouse after 15 long years trying to make things
work. I moved into my own apartment, got a job and
worked very hard to become debt free. During this
time, I gave my then spouse two years to get
counseling and work on the issues. After realizing
that he had done nothing, I divorced him in
2020. A year later in April 2021, I moved out of
the apar...
FREEDOM OF SPEECH, that sacred 1st Amendment right
that sits upon a marble pedestal, polished into a
brilliant sheen by the courts, has taken on a less
honorable meaning these days. Freedom of speech
is all-inclusive, like a cruise to the Bahamas.
It includes freedom to lie, to dissemble, to
exaggerate, to spew disinformation with not one
whit of effort to verify validity. Freedom of
spee...
My question is this, if you have a roommate when
you watch television do you wear headphones or
keep it at a low volume so as not to disturb your
neighbor? I do or don’t watch tv. On the GI
surgical floor those are the rules, printed and
everything.
I’m on what’s called the medical floor and it
has just opened up, it’s not new or swank...
We have survived Ian here in SW Florida and so very grateful. Lots and lots of people with heartbreaking stories and destruction. Today we have both water and electricity back in service so onward and upward. Our community is new and was built...
Moving to Massachusetts a few years back I
wasn’t sure what to expect neighbor wise.
When I lived in Washington state I had no idea
who my neighbors were and it was honestly probably
best that way I lived in my mother’s townhouse
that I inherited the payments on when she passed
away. It was a lovely home but it had an HOA that
was constantly in my business no love was lost
between myself an...
It was hard to accept that I had a stoma it was
either that or death. I just recently got one less
than a month ago….. I talk to it a-lot like
saying u not going to blow up my bag today ….
Not today u better keep that bag on and it better
not fall off….. sometimes u have to make the
best out the situation to keep from becoming
depressed. I’ll probably never date again and
I’m ok with ...
I’m sitting in the calm of a sleeping
house all prepped and ready for surgery. It’s
currently 1am here in Washington state. We’re a
tad behind the rest of the world.
I’m not sure if a bowel prep is better
with or without an ostomy. I had the grand
pleasure of putting 2 Liters of soapy (go figure
️) water into my stoma. I have a loop
ileostomy, so t...
If you have an ostomy and you decide to eat
this……your output looks exactly like it did
going in, minus the pink middle. 🫣 I did not
know there was 11,457 little pieces of peanuts or
nuts or whatever is mixed in the chocolate, I know
now. So, I warn all ostomates, beware a Twin Bing.
Messiest thing I’ve had come out so far.
You’re welcome, enjoy your Thursday.
Just need to vent a little: Going to hear some
music down by a river town, which I love. Earlier,
at home getting ready, I was just kind of thinking
out loud, something along the lines of, “I hope
our friends are staking a spot near the
bathrooms.” My husband said, “Well, I don’t
know, ask them to move. What’s the big deal?”
It really is so NOT a big deal, just one of those
times wh...
Hi. I am new to this group. My son is 26, he is
scheduled for completion protectomy surgery in a
few weeks time. Last March he had sub total
colectomy and end ileostomy. His sigmoid was too
inflamed to be removed which is what they are
removing and the rectum.
His surgeon gave 2 bits of advice.
1... loose some weight as healing will improve
post surgery and eat accordingly (because of my
...
HERE’S A TRITE TRUISM: There’s no such thing
as a stupid question. They wouldn’t be asking
if they didn’t want to know, and wanting to know
is a good thing. That’s how we learn; that’s
how we grow; that’s how we survive. As
magnificent an instrument as is the human brain,
we only use part of it, after all, and learning is
an active, adventurous, two-way street that
require...
So seeing as quite a few people want another
icebreaker-type game, I thought long and hard …
ok, maybe I just typed icebreaker questions into
Google and scrolled and clicked on links until I
found something and then thought, “duh? Why
didn’t I think of this ages ago?” Anyway, how
about something like a game of kiss, marry, kill.
Let’s make it so that we have more than one
gender in th...
Well, my daughter,her boyfriend and I celebrated
our Thanksgiving today (as I worked yesterday). I
spent the day cleaning (as I work so many hours a
week, it is genuinely hard to keep up with the
housework-especially with 5 cats), anyway, I made
2 pumpkin pies from scratch (only because my
daughter loves them so), did a load of
laundry--managed to squeeze in a short nap-shoved
the ham in the ov...
FORMER NFL STAR DEION SANDERS was colorful enough
to garner two nicknames: Prime Time, and Neon
Deion. As a football coach now, he is called
Coach Prime. But due to medical issues with his
left foot, he recently had to have his big toe and
his second toe amputated. How ambulatory he will
be in the future is yet to be determined, but
it’s fortunate that this didn’t happen during
his ...
My friend and caretaker Rick wants to get out of
the house, I do too honestly. Taking a medium
sized (for me) road trip to Worcester to see the
“Woo Sox” AAA baseball game and bundling up
since its close to fall in New England. It’s a
nice one year old ballpark, Polar Park. When I was
feeling better in summer of 21, I was able to take
my niece to a game and we had a great
time!
Evening all, I’m from upstate New York and winter is coming!! Just got an ostomy bag a week ago and was wondering if anyone has hiked in cold weather with their bag. I mean cold, like 30 degrees below zero! Worried it may freeze?
Done, I am now an ostomate. I am home with very little pain. I am walking but do tire quickly. Not much of an appetite, but try to eat in small snippets.
Prior to surgery my wife talked to surgeon about preserving the prostate nerves so we could ...
I haven't been out dancing since I started my
ostomy journey (Nov 2019 started chemo, radiation,
surgery, recovery) and I used to love to dance!
There is a dance next Saturday I want to go to so
I was doing some searches to make sure all is ok
for that type of activity.
I also want to learn belly dancing and found this
very inspirational interview. Thought I would
share. ️
I’ve been missing you all because life
has been big. I have lots of stories we can laugh
(or cry) together through. I’m going to post a
list of stories. Tell me a story that’s happened
recently in your “perfect” life. Then pick a
story you want me to tell. This should be an
amusing, fun, and humbling experience. I can’t
wait to spill all the tea. We can be human
together.
JUST BECAUSE WE NEEDED TO DO SOMETHING that felt
good, we went out to dinner Saturday night. We
usually save that sort of extravagance for special
occasions but, I guess, we just decided to
manufacture a special occasion. So off we went to
our favorite mom & pop Italian restaurant. “We
won’t need those menus,” I told the waitress.
We always get the same thing. Why experiment when
you know...
Here it is, all my wisdom wrapped up in 1 simple
statement….This ostomy thingy you got has either
saved your life or made it better in some form.
You’re not buried in dirt and hopefully you’re
feeling better, enjoy each and every day. It’s
not that bad in the big scheme of things. So, put
your cape on and have a good Monday.
Well, last night after letting my surgeon have it
for listening but not hearing me I felt two very
sharp pains a few inches to my left of the
ileostomy. They went away and I thought nothing
more of it.
I have alarms set overnight to remind me that
I’m on TPN and need to empty usually 3 times
overnight. Last night I only had to empty once.
The alarms still went off I just wasn’t having
any ...
When I found this web site, I didn’t think its
name had anything to do with actually meeting an
ostomate but I later learned there were some folks
who did meet and develop relationships. How good
is that? That wasn’t my intention. I
definitely didn’t want anyone to meet me. I
felt broken and wasn’t prepared to express those
feelings. I thought it was a place where ostomates
wro...
Hi mates, haven't been on site for a few years.. I walked into the grocery store today and looked around at the people doing their shopping, cringing at the prices, checking their lists, just doing the routine they do to live. I wonder how many i...
I was baking a batch of cookies yesterday, a chore
I usually find onerous. I like cooking as there
is an element of creativity to it, but baking is
basically just following instructions,
boring....anyway, I digress. As I often do when
baking, to make the time more enjoyable, I put
some music on, nice and loud. I chose a
selection I had not listened to for a few years,
The Best of The Temp...
THE TOPIC HERE IS ACTUAL MEATLOAF, not the
recently deceased singer/actor, may he rest in
peace. My meatloaves have typically been blah
creations, slapped together when nothing else is
available. But this week, I hit on an additional
ingredient that made it really good: hoisin
sauce. We have used this with stir-fry for
years, but otherwise it just sat on a shelf in the
fridge. It is m...
Just wondering if there are any ostomates who have
travelled to Israel and swam in the Dead Sea. I
know they warn people not to open their eyes under
the water there because it is so concentrated with
salt.
I wanted to know if anyone has swam in the water
and felt any pain/severe stinging around their
stoma due to the strong salt? I'm planning to
swim/float there on my trip to Israe...
This site is a godsend. As a newbie (colostomy on
Nov 8,'21), I look at it every day for a number of
reasons. Reading what people are going through
makes me grateful that my elective surgery because
of a severe case of IBS-C is nothing compared to
what they have been through and are still
living with.
I don't have to go the hospital for anything
related to my ostomy. I feel sorry for those...
THE THINGS THAT WEALTHY PEOPLE DO with their money
astound me. Some go in for flashy jewelry, rings
and Rolex watches and lots of gold. Some spend
money on expensive cars, big boats, and houses
much bigger than what they need to actually live
in. Others hire nannies to care for their
children, maids to clean their homes, cooks to
make their meals, gardeners to tend their yards,
and a variety of...
RICE IS ONE OF MY FAVORITE FOODS. White rice,
jasmine rice, yellow rice, Rice A Roni. “Rice
is great,” said Mitch Hedberg, “if you’re
hungry and want 2,000 of something.” Then
there’s Spanish rice, fried rice, herbed rice,
Indian rice. The only rice I don’t like is
brown rice which, as it turns out, is whole grain
and more nutritious than white rice, but that’s
the way i...
I just wanted to share this article I just read,
it was linked from the r/ostomy subreddit, it was
written by a fellow ostomate for The Daily Beast,
and it’s in response to Matthew Perry’s
now-infamous article:
ONE SUMMER WE WERE DRIVING in the Appalachians,
enjoying the rural atmosphere and the beauty of
the curvy roads through green hills, when we ended
up behind a medium-sized flatbed truck loaded with
cages, all strapped down and secured. The cages
were filled with live chickens and the speed of
the truck was enough to cause thousands of white
feathers to come flying out of the cages, filling
th...
I have so much to share about my personal experience and it begins here. I've been home from the hospital for 3 weeks and am still wrapping my head around exactly what happened. I have increasingly had food tolerances over the last 20 years or so....
I just took a shower with my bag on since I
changed it this morning. I always use a tiny
binder clip at the velcro closure for added
protection. I took the clip off so that I could
unravel the bottom and dry it off. In the
meantime, my phone rang. As I went to answer it, I
let go of the bottom of my bag - I must have
forgotten that it wasn't closed while
multi-tasking - and heard (and felt ) a ...
