In public places/porta potties, I just hold my shirt under my chin. I empty in the standing position if I'm using a porta potty or on a train engine. Otherwise, I kneel to empty.
AlexT
Aug 27, 2022 8:23 pm
Maried
Aug 28, 2022 4:42 pm
My shirts are not very long, but my bag is. Coloplast 15821. If needed, I can put the edge of my shirt on top of my bag. I like a longer bag because it is much easier to empty while standing.
MeetAnOstoMate is a remarkable community of 41,403 members.
“I mostly read and still feel like I belong.”
“Doctors took notes; they want others to find this website.”
“From midnight blowouts to big wins, there’s always a hand to hold.”
Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
Advertisement
Hollister
Living with an ostomy doesn’t mean you have to live with stoma fluid leakage or skin irritation.
Learn how convex skin barriers work and what benefits they offer.
Learn how convex skin barriers work and what benefits they offer.