HAS ANYONE TAKEN RX CREON WITH A COLOSTOMY? Creon has serious warnings if taking greater than 12000 mg with each meal & I have been prescribed 72000 mg per meal as my pancrease is collapsed with atrophy. Warning leaflet says can cause fibrosing colonopathy. Has anyone taken high dose long term Creon with a colostomy? Thank you.
lindabres
Jul 16, 2019 8:43 pm
iMacG5
Jul 21, 2019 7:37 pm
Hi Lindabres. Sorry, I know nothing about the stuff you're addressing. It sounds to me like this is some serious stuff that would need the involvement of very specialized practitioners. Wish you the very best and would love to hear the good news when you get this resolved.
Sincerely,
Mike
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Posted by: Immarsh
Hi Hatlady and all,
I've had my ostomy for over 50 years, since I was a kid, and didn't think I really needed to be part of the ostomy site. But once active, I came to realize, that although I may not need help at the time, I was able to reach out and help others in need. Back in the day, before stoma therapists, I use to visit new patients in the hospital or homes ... While professionals are great, it is also good to be able to speak with people with personal experience. I was a free member for awhile, but after writing often, I was given free months. I then started paying, and decided to just take lifetime membership. After all, I was going to have my ostomy for the rest of my life. I'm one of those people who can disappear for a few months at a time, but I'm always glad that the site is here, I can return and reconnect with old friends, and make new ones. This is an excellent site ... Best regards to all ... and Best wishes for a Healthy and Happy New Year.