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No reversal

Posted by shortywalker, on Fri Nov 29, 2019 12:26 am

Hi all Awhile ago I was very unsure as to have my colostomy reversed . The decision is now that im not having the reversal totally my choice. After seeing my surgeon the risks are to high because of the fact of the prednisone im on for my severe psoriatic arthritis. I tried weaning off it for three mths which saw my inflammation levels go through the roof. Because of this drug the reconnection could break apart which would result in a stoma on the other side so more surgery and once again weaning down off prednislone  again just to much to bear. So percy gets to stay with me for life can change my mind if i want down the track. As my surgeon said im alive im healthy apart from the arthritis so i dont want to go through it all again. Also i received my ostaway disposal bags from america they are great and will probably get more in time. Its a shame the shipping costs were $53 australian more than the cost of the bags so got a $97 bill for a hundred bags. They will be great for our cruise in 2021 and good for travelling in our caravan but will stick to the doggy doo bags for home. Cheers Shorty.

Reply by warrior, on Fri Nov 29, 2019 12:40 am

Good for you. Sounds like you made the right decision.

Reply by w30bob, on Fri Nov 29, 2019 2:31 am

Hi shorty,

   Does Otezla not work for your psoriatic arthritis? I hear ya about the prednisone, I was on it for years at stupidly high dosages. It will really f#$k you up and really isn't a good long term treatment, but sometimes it's the only thing that works.  Sounds like you're proceeding with eyes wide open, good for you!  

Regards,

Bob

Reply by Bill, on Fri Nov 29, 2019 5:05 am

Welcome to the refusal club! These decisions are a very personal matter  but it is really heartening to hear you share your reasoning and decision making. It was easy for me because the condition that preceded my stoma would undoubtedly have returned if I had it reversed.

Best wishes

Bill

Reply by shortywalker, on Fri Nov 29, 2019 5:45 am
w30bob wrote:

Hi shorty,

   Does Otezla not work for your psoriatic arthritis? I hear ya about the prednisone, I was on it for years at stupidly high dosages. It will really f#$k you up and really isn't a good long term treatment, but sometimes it's the only thing that works.  Sounds like you're proceeding with eyes wide open, good for you!  

Regards,

Bob


Hi Bob haven't heard of Otezla my rheumatologist has had me on everything but nothing worked but the prednislone only take 7mg per day would love more but don't want the extra damage. Still only 80 percent pain free already have thin skin and bones not my choice of drug but sometimes quality of life wins out. Cheers  Shorty.

Reply by shortywalker, on Fri Nov 29, 2019 5:55 am
warrior wrote:

Good for you. Sounds like you made the right decision.


Thanks warrior for your comments.

Reply by w30bob, on Fri Nov 29, 2019 7:34 am

Hi shorty,

  Here are the links to 4 of the most recent meds for PA. I was under the impression that the biologics were wonder drugs for your condition........but your doc knows best.  If you've already tried these  just disregard......but if not give your doc a boot in the ass and give them a try. I take Humira and they just changed the formula to remove the citrate and now use a super thin needle. So you really don't feel the injection at all. Easy- peasy.

https://www.cosentyx.com/psoriatic-arthritis/how-cosentyx-works

https://www.otezla.com/psoriatic-arthritis/treatment

https://www.humira.com/psoriatic-arthritis/how-humira-treats-psoriatic-arthritis?cid=ppc_ppd_ggl_psa_bv_DDA_drugs_for_psoriatic_arthritis_Phrase_USIMMR190176&&cid=ppc_ppd_ggl_psa_bv_DDA_drugs_for_psoriatic_arthritis_Phrase_USIMMR190176&gclid=EAIaIQobChMImNaDzKeP5gIVC4vICh10XgaPEAAYASAAEgIYiPD_BwE

https://www.simponiariatracktotreatment.com/?utm_source=google&utm_medium=cpc&utm_campaign=GO-USA-ENG-PS-Simponi+Aria-GP-BM-RN-DTC_PsA&utm_content=PsA&utm_term=%2Bdrugs+for+%2Bpsoriatic+%2Barthritis&gclsrc=aw.ds&&gclid=EAIaIQobChMImNaDzKeP5gIVC4vICh10XgaPEAAYBCAAEgIhFfD_BwE

There may be others as well, as treatment options for PA has exploded over the past few years

Regards,

Bob

 

Reply by shortywalker, on Fri Nov 29, 2019 7:47 am
w30bob wrote:

Hi shorty,

  Here are the links to 4 of the most recent meds for PA. I was under the impression that the biologics were wonder drugs for your condition........but your doc knows best.  If you've already tried these  just disregard......but if not give your doc a boot in the ass and give them a try. I take Humira and they just changed the formula to remove the citrate and now use a super thin needle. So you really don't feel the injection at all. Easy- peasy.

https://www.cosentyx.com/psoriatic-arthritis/how-cosentyx-works

https://www.otezla.com/psoriatic-arthritis/treatment

https://www.humira.com/psoriatic-arthritis/how-humira-treats-psoriatic-arthritis?cid=ppc_ppd_ggl_psa_bv_DDA_drugs_for_psoriatic_arthritis_Phrase_USIMMR190176&&cid=ppc_ppd_ggl_psa_bv_DDA_drugs_for_psoriatic_arthritis_Phrase_USIMMR190176&gclid=EAIaIQobChMImNaDzKeP5gIVC4vICh10XgaPEAAYASAAEgIYiPD_BwE

https://www.simponiariatracktotreatment.com/?utm_source=google&utm_medium=cpc&utm_campaign=GO-USA-ENG-PS-Simponi+Aria-GP-BM-RN-DTC_PsA&utm_content=PsA&utm_term=%2Bdrugs+for+%2Bpsoriatic+%2Barthritis&gclsrc=aw.ds&&gclid=EAIaIQobChMImNaDzKeP5gIVC4vICh10XgaPEAAYBCAAEgIhFfD_BwE

There may be others as well, as treatment options for PA has exploded over the past few years

Regards,

Bob

 


Thanks Bob started out on methotrexate, then embrel, then humira, simponi, consenty x injections and the last just recently xlejanz. Don't know why none help me but will be asking about the one you have mentioned may not be FDA approved in australia

Cheers  Shorty .

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