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Ileostomy and magnesium deficiency

Posted by 2marilyn2, on Tue Dec 17, 2019 3:38 pm

hi all,

 

i’ve had an ileostomy now for nearly two years and because of high output have an ongoing problem with low magnesium!  I spent last year, once a week every week at hospital having a day long magnesium infusion which was starting to play with my head, slowly bringing down my mental state!  For the first part of this year it seemed to settle but in June I suffered a blockage and since them I’m back to having regular infusions!  Anyone had this problem and any advice from you knowledgeable people, the advice on here is so helpful! Thanks! 

 

 

Reply by kstyle, on Tue Dec 17, 2019 3:52 pm

Hello- I have had the same issues and my indicators have been involuntary and painful muscle cramping (like when one dives into a pool and gets "the bends" say in your toes) but in my legs and fingers locking up. At times it's as if I'm having the most extreme charlie horse cramp with stabbing pain.  This is when I know my levels have dropped and an infusion is imminent.  To combat this I take a magnesium Gluconate supplement- usually 2 in the am and 2 in the pm 500mg ea and my symptoms seem to dissipate unless there are other extreme circumstances that pose the onset of a deficiency.  These can be purchased OTC or like me I order in bulk right from the pharmacy a large quantity bottle simply for a cost savings.  As always seek the advice of your prescribing physician.  Hope this helps.

K

Reply by 2marilyn2, on Tue Dec 17, 2019 4:12 pm

Hi kstyle, thanks for your quick reply!  I have been taking magnesium tablets, I was taking four daily but then my Consultant told me not to take so many as magnesium going into the stomach causes the output to be higher so I cut them to two daily but it’s not making any difference!  I also use magnesium flakes in a foot bath nightly as this is supposed to be better going in through the skin (transdermal) than into the stomach. For all I know it might be making a difference, maybe my magnesium levels would drop even quicker if I wasn’t trying these things!  I had a terrible day yesterday, as you say, muscle cramps, terrible exhaustion and I also get heart palpitations which when I get them I know I’m on the slippery slope!  At the moment I’m getting two weeks out of every infusion, the days at the hospital are so long, I’m there at 9am and most times I’m not leaving till 11pm!  Starting to pull me down mentally again, I’m 71 and getting on, the ileostomy I can cope with but not the constant deficiency!  What a moan I am, lol!  Thanks for your kind reply, good to know I’m not the only one on the planet with these problems!  I’m in Scotland but one of my favourite places is New York, love it!

kstyle wrote:

Hello- I have had the same issues and my indicators have been involuntary and painful muscle cramping (like when one dives into a pool and gets "the bends" say in your toes) but in my legs and fingers locking up. At times it's as if I'm having the most extreme charlie horse cramp with stabbing pain.  This is when I know my levels have dropped and an infusion is imminent.  To combat this I take a magnesium Gluconate supplement- usually 2 in the am and 2 in the pm 500mg ea and my symptoms seem to dissipate unless there are other extreme circumstances that pose the onset of a deficiency.  These can be purchased OTC or like me I order in bulk right from the pharmacy a large quantity bottle simply for a cost savings.  As always seek the advice of your prescribing physician.  Hope this helps.

K



Reply by Bellily, on Tue Dec 17, 2019 4:23 pm

they make ionic magnesium, sometimes called angstrom (sp?) magnesium.  it gets absorbed under your tongue and bypasses the g.i. tract.

i take it and it helps me with cramps and such.

Reply by renomar, on Tue Dec 17, 2019 4:53 pm
kstyle wrote:

Hello- I have had the same issues and my indicators have been involuntary and painful muscle cramping (like when one dives into a pool and gets "the bends" say in your toes) but in my legs and fingers locking up. At times it's as if I'm having the most extreme charlie horse cramp with stabbing pain.  This is when I know my levels have dropped and an infusion is imminent.  To combat this I take a magnesium Gluconate supplement- usually 2 in the am and 2 in the pm 500mg ea and my symptoms seem to dissipate unless there are other extreme circumstances that pose the onset of a deficiency.  These can be purchased OTC or like me I order in bulk right from the pharmacy a large quantity bottle simply for a cost savings.  As always seek the advice of your prescribing physician.  Hope this helps.

K


I found supplements not to work for me with having an ileostomy.  The lower intestines (which absorbs supplements) were removed.  I have all you described...extreme muscle spasms & finger locking.  I drink a full glass of good old-fashion water as soon as it starts which helps tremendously and I make sure I am eating more foods enriched with magnesium which are absorbed in the stomach quicker, mainly & upper intestines. Less expensive & a more natural option than supplements.  It works for me.

Reply by charleston guy, on Tue Dec 17, 2019 7:39 pm

Hi Marilyn and Kstyle,

I too have the same issue with low magnesium tried the supplements but they weren't that great as it gave me more than bargained for. Asked my GP as I was also having those painful cramps in my hands and calf's he recommended that I try the Magnesium spray. So far it has been working and the issue with my ileostomy in my output being watery has stopped. Hope this helps.

Charleston guy

Reply by kstyle, on Tue Dec 17, 2019 8:20 pm
charleston guy wrote:

Hi Marilyn and Kstyle,

I too have the same issue with low magnesium tried the supplements but they weren't that great as it gave me more than bargained for. Asked my GP as I was also having those painful cramps in my hands and calf's he recommended that I try the Magnesium spray. So far it has been working and the issue with my ileostomy in my output being watery has stopped. Hope this helps.

Charleston guy


Thanks!  I will look into that as well! ☺️

K

Reply by 2marilyn2, on Wed Dec 18, 2019 6:20 am

Hi Charleston guy,

 

thanks for the input to help with the output,lol!  I will try that too, is there a particular spray you use and do you spray under the tongue!

kstyle wrote:
charleston guy wrote:

Hi Marilyn and Kstyle,

I too have the same issue with low magnesium tried the supplements but they weren't that great as it gave me more than bargained for. Asked my GP as I was also having those painful cramps in my hands and calf's he recommended that I try the Magnesium spray. So far it has been working and the issue with my ileostomy in my output being watery has stopped. Hope this helps.

Charleston guy


Thanks!  I will look into that as well! ☺️

K



Reply by charleston guy, on Wed Dec 18, 2019 7:07 am

Hi Marilyn and Kystle,

It's Mg 12 spray I got it from my local Pharmacy.

I just apply it to the underside of my wrists or just behind my knees. It's an oil spray that I rub in after I spray it. 

Charleston guy

Reply by 2marilyn2, on Wed Dec 18, 2019 8:04 am

Hi kstyle,

 

can an I ask if you know what your magnesium level is in your blood, my results are showing consistently low, around the 0.55 level.  What I’m wondering is if any of the supplements in any form are likely to help at that low level!  My Consultant seems to think only IV is the answer! Thanks!

2marilyn2 wrote:

Hi kstyle, thanks for your quick reply!  I have been taking magnesium tablets, I was taking four daily but then my Consultant told me not to take so many as magnesium going into the stomach causes the output to be higher so I cut them to two daily but it’s not making any difference!  I also use magnesium flakes in a foot bath nightly as this is supposed to be better going in through the skin (transdermal) than into the stomach. For all I know it might be making a difference, maybe my magnesium levels would drop even quicker if I wasn’t trying these things!  I had a terrible day yesterday, as you say, muscle cramps, terrible exhaustion and I also get heart palpitations which when I get them I know I’m on the slippery slope!  At the moment I’m getting two weeks out of every infusion, the days at the hospital are so long, I’m there at 9am and most times I’m not leaving till 11pm!  Starting to pull me down mentally again, I’m 71 and getting on, the ileostomy I can cope with but not the constant deficiency!  What a moan I am, lol!  Thanks for your kind reply, good to know I’m not the only one on the planet with these problems!  I’m in Scotland but one of my favourite places is New York, love it!

kstyle wrote:

Hello- I have had the same issues and my indicators have been involuntary and painful muscle cramping (like when one dives into a pool and gets "the bends" say in your toes) but in my legs and fingers locking up. At times it's as if I'm having the most extreme charlie horse cramp with stabbing pain.  This is when I know my levels have dropped and an infusion is imminent.  To combat this I take a magnesium Gluconate supplement- usually 2 in the am and 2 in the pm 500mg ea and my symptoms seem to dissipate unless there are other extreme circumstances that pose the onset of a deficiency.  These can be purchased OTC or like me I order in bulk right from the pharmacy a large quantity bottle simply for a cost savings.  As always seek the advice of your prescribing physician.  Hope this helps.

K





Reply by 2marilyn2, on Wed Dec 18, 2019 8:06 am

Thank you Bellily, I will try this!

Bellily wrote:

they make ionic magnesium, sometimes called angstrom (sp?) magnesium.  it gets absorbed under your tongue and bypasses the g.i. tract.

i take it and it helps me with cramps and such.



Reply by Amusement, on Sun Dec 29, 2019 8:13 pm

Marilyn, sorry to hear the problem with Mag.  I have a colostomy and also suffer with low mag due to high output.  I too have done the infusions on a regular basis.  Are you take MagOx daily?  Because of high output causing dehydration I have kidney damage.  My kidney specialist was the one who put me on MagOx and manages my labs to ensure I stay within range.  There is also a mag injection that last for about a month.  If you do not have someone monitoring this regularly, ask your doctor to start checking this.  I have not had an infusion since April so something is working well.

Reply by Coco11050, on Sun Dec 29, 2019 10:51 pm
Amusement wrote:

Marilyn, sorry to hear the problem with Mag.  I have a colostomy and also suffer with low mag due to high output.  I too have done the infusions on a regular basis.  Are you take MagOx daily?  Because of high output causing dehydration I have kidney damage.  My kidney specialist was the one who put me on MagOx and manages my labs to ensure I stay within range.  There is also a mag injection that last for about a month.  If you do not have someone monitoring this regularly, ask your doctor to start checking this.  I have not had an infusion since April so something is working well.


Hi Amusement, i too have kidney issues due to extreme hydration and my kidney specialist is kund if crazy aniut any supplements. Where do you get the MagOx that you mentioned?? It sounds like something that would help me. Hope you are continuing to do well. Vicki in Yucaipa 

Reply by NewlifeVictoria, on Sun Jan 26, 2020 11:42 am
kstyle wrote:

Hello- I have had the same issues and my indicators have been involuntary and painful muscle cramping (like when one dives into a pool and gets "the bends" say in your toes) but in my legs and fingers locking up. At times it's as if I'm having the most extreme charlie horse cramp with stabbing pain.  This is when I know my levels have dropped and an infusion is imminent.  To combat this I take a magnesium Gluconate supplement- usually 2 in the am and 2 in the pm 500mg ea and my symptoms seem to dissipate unless there are other extreme circumstances that pose the onset of a deficiency.  These can be purchased OTC or like me I order in bulk right from the pharmacy a large quantity bottle simply for a cost savings.  As always seek the advice of your prescribing physician.  Hope this helps.

K


Hi How do you really know that's what it is? Mag is important!! I must say I have had the pills in my bag!Anyone else have this issue? I'm trying to figure out liquid vitamins because I took gummies and was told by a couple people here, not my doctor, well I guess we have to figure it all out! I know I gained to much weight and now I'm doing smoothies and it's bothering me to eat solid stuff, thanks for everything and everyone in this group! 😇

Reply by kstyle, on Sun Jan 26, 2020 3:29 pm

Hi NewLife-

In answer to your question "how do I know..."?

I have bloodwork done every other week- my Dr monitors everything- that is how I know- 

Always check with a Dr that you trust- 

k

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