hi, I have a 1 month old baby boy who underwent Ileostomy since he has issues with bowel movement (reason: Immature ganglion nerve cells in Colon). Currently i am Not using any ostomy bags , instead using diapers and gauge pads to obsorb the stool. I am looking for tips or ideas from Not using Ostomy bags.
Thanks
Ramsri
Hi Ramsri-
My first question is do you not have access to pediatric/infant pouches? I understand that an infant obviously has to wear a diaper regardless, however, with an ileostomy having constant output whether it is stool or not can be quite debilitating to your babies tender skin. If you are not using any type of pouching system, I would suggest using some kind of skin protectant possibly oil based like Desitin or something of that nature. I'd also like to point out that I am not an MD, so if I were in your position- I'd seek the advice from an ostomy nurse for a pouching system or speak with your child's surgeon regarding prevention of any infection from output.
In the meantime, enjoy every moment with your new precious bundle of joy!
K
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Hi Kstyle,
Thank your response. I have availability for Adult Stoma bags here in India, but my preference for not using Stoma bags is that the skin barrier used as part of Stoma pouch will create irritation for the baby and also I experienced difficulty when I Stoma paste ointment since it dries quickly and not easy to remove later. Currently I am using AD diaper rash cream. I was thinking of using larger size diapers which will waist above the stoma so that it can secure any gauze pads or cloth pouch to collect the stool.
thanks
RamSri
I have met and become great friends with the Mother of an Infant that is now over one year old. He has a double Ostomy. Two stoma side by side. She is in the Philippines and had a hard time getting quality pouches that worked. They would not last a hour and was at her wits end. A lot of us on the site sent her adult pouches. She cut them short and used a clip on the bottom and the child did very well using them. I would suggest you speak with her. I forgot her user name here but will instant meaaage her to contact you in this site. She may be able to help you through some of the things she had overcome. Her name is Naomi. Her username is that plus some numbers I think. I just went and looked her up. Her user name is NAZ100601.
puppy
Hi Puppy,
thank you for forwarding the information, I will contact her to know how she took care of the ostomy for her baby. My baby also has loop-stoma ie (two-stoma side by side ).
thanks
ramsri
I have sent you a private message with her information. She would love to talk with you!'
Puppy
Hi,
I was born premature and originally had a colostomy and that was reversed and then at 2 years I had a urostomy and my mother did the same used diapers but that is not really a good idea.
There are pediatric pouches and the ones they have now are so amazing. When I had them 58 years ago I had a cement like substance and a bag that was like a hot water bottle. Now they are light and easy to work with. You should find an ostomy/wound care nurse and they can advise you or call one of the manufacturers, Convatec, Hollister, Coloplast and see what they can offer you in regards to advice and samples. Just a suggestion.
Hi Puppy
since I am not upgraded membership so I cannot read the message . Can you provide her information to . Thank you Puppy
Her FB name is Naomi Fergara Enriquez. She did say she would look you up on here as well.
you should be able to read a private meaaage when one is sent to you. You cannot initiate one. Hope that still holds true and they have not changed it.
hope you can talk with her. She is great and her baby thrives even though he has so many issues!
take care,
Puppy
Her FB name is Naomi Fergara Enriquez. She did say she would look you up on here as well.
you should be able to read a private meaaage when one is sent to you. You cannot initiate one. Hope that still holds true and they have not changed it.
hope you can talk with her. She is great and her baby thrives even though he has so many issues!
take care,
Puppy
