Food

Hi CK,

  Whoa........you said a lot there.  Let's make sure I got this right........you have a stoma IN your belly button? I'm no doctor, but from what I think I know....they can't put a bowel stoma thru a belly button.  The backside of your belly button is a thick fibrous cord (your old umbilical cord), called the urachus, which is anchored at your bladder.  So trying to cram a large bowel (larger in diameter than your old hardened shriveled up umbilical cord and your belly button hole) into that  umbilical and out thru your belly button really wouldn't work well (or so I was believing before reading your post).  I'm not saying they didn't do that........just that I've ne heard of it.  What I have heard of is something called a "Mitrofanoff stoma", which does go thru your belly button, but it's not your bowel, it's a small tube made from either your appendix or a piece of your bowel, that connects to your bladder, not your intestines.  It's a procedure done when there's an issue with one of your ureters (we have two, one goes to each kidney).   So I'm thinking you have one of two possibilities........either you have had the Mitrofanoff procedure done because the mesh cut into a ureter........or your stoma is placed very close, but not actually thru your belly button.  I know from my own stoma being close to my belly button that you'd be hard pressed to find my belly button.....but it is there.  I've never heard of an intestinal stoma being placed in the direct center of your abdomen....it's almost always in one of the lower quadrants, otherwise every time you bent at the waist you'd be strangling your stoma......and no barrier is flexible enough to do that.  So first, help me understand a little better what you have.  Are you sure your stoma is THRU your belly button?  Any chance you got a copy of the surgical report from your operation?  Folks should always get a copy of that each time they are operated on to keep in their records.  Your next surgeon will really appreciate it.  So CK, shout back and help me out here. 

thanks,

bob

Hi CK,

  Whoa........you said a lot there.  Let's make sure I got this right........you have a stoma IN your belly button? I'm no doctor, but from what I think I know....they can't put a bowel stoma thru a belly button.  The backside of your belly button is a thick fibrous cord (your old umbilical cord), called the urachus, which is anchored at your bladder.  So trying to cram a large bowel (larger in diameter than your old hardened shriveled up umbilical cord and your belly button hole) into that  umbilical and out thru your belly button really wouldn't work well (or so I was believing before reading your post).  I'm not saying they didn't do that........just that I've ne heard of it.  What I have heard of is something called a "Mitrofanoff stoma", which does go thru your belly button, but it's not your bowel, it's a small tube made from either your appendix or a piece of your bowel, that connects to your bladder, not your intestines.  It's a procedure done when there's an issue with one of your ureters (we have two, one goes to each kidney).   So I'm thinking you have one of two possibilities........either you have had the Mitrofanoff procedure done because the mesh cut into a ureter........or your stoma is placed very close, but not actually thru your belly button.  I know from my own stoma being close to my belly button that you'd be hard pressed to find my belly button.....but it is there.  I've never heard of an intestinal stoma being placed in the direct center of your abdomen....it's almost always in one of the lower quadrants, otherwise every time you bent at the waist you'd be strangling your stoma......and no barrier is flexible enough to do that.  So first, help me understand a little better what you have.  Are you sure your stoma is THRU your belly button?  Any chance you got a copy of the surgical report from your operation?  Folks should always get a copy of that each time they are operated on to keep in their records.  Your next surgeon will really appreciate it.  So CK, shout back and help me out here. 

thanks,

bob

Yes I have to wear a bag I can still go to the bathroom but my bag gets poop in it to plus anything I drink or eat goes in it I have to empty it all the time I have very bad scar adeshions my bowl kink when they did my second surgery that's how they put it

I'm sorry  you're going through that Ck.I had my entire large intestine and rectum removed so there is no possibility of any kind or reversal surgery so I find that I have to empty my pouch up to ten times a day, which really is a pain the ass, no pun intended. And since I no longer have a large intestine, I find that after eating a meal I start having to empty the pouch less t han twenty minutes or so right after eating. It's difficult when I  used to eat out at restaurants or if I was at work and have to go to the bathroom a number of times more than non-ostomates. It's one of those difficult adjustments we have to make. I didn't have any other alternative in my case. Good Luck! I'm rooting for you.

Are you tai ask kinghrr for that they gave it to me when I was in hospital but she said I didn't need it I know any meds to slow output down? They trialled in the early 1980's bringing stoma's out through belly button as the hole was already there from abilical cord so there was less chance of developing hernia's it was very successful in hernia prevention but there were so many problems getting bags to stay on in that possition they stopped doing it that way in the mid 80's most people had more surgery to resit there stoma, expect as yours is temporary they did it that way to prevent hernia's in the future.....Hope your reversal goes ahead soon. Best of luck