I've had my ileostomy since 2015. I have to empty my bag a crap load of times throughout the night. (See what I did there?). It seems to have gotten worse over time. I've changed my eating schedule to eating small amounts throughout the day, instead of full meals. I don't eat after 5 or 6pm. If I do, it's just some crackers or a cheese stick. Getting up 6-10 times every night is not unusual. I average 3-5 hours of sleep. I function, but, this can't be healthy. Can anyone relate, or offer any advice? This sh*t has got to stop! (See what I did there?).
i just went through a time like that recently. I had started a new supplement that was doing me in. I started on Magnesium for some nerve and muscle issues and it really upset my routine! I have a Colostomy and irrigate so it was driving me crazy til I found out what was it. I am not one to relate food or medications to symptoms. That Med. had been my only change. Once I stopped the Magnesium it stopped. So, has any of your medicines changed or the dosage? I usually think, what did I eat? It did take a me a while to put it together. Secondly have you eaten a food that you have not had in while? I know any kind of fruit is not kind to me. I hate that and eat it anyway but expect the consequences.
Otherwise, a possible stomach bug. Maybe call your Doc. If all else fails.
Sure hope you find the cause of all this. You must be dehydrated with all that going on!
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Bukowski: My reaction is that it's diet related. You've had your surgery long enough now to likely know what makes you run more than other things, but sometimes it's difficult to narrow it down, I suppose. I too stop eating at 6 PM to minimize my nightly potty trips. If I was experiencing your issue, I'd reflect hard over my diet to try and identify potential things that're causing the activity. Milk products, for instance? Fruits? Coffee? We all have different systems, notwithstanding that we have the same sort of surgery, and finding the likely culprit isn't easy sometimes. Any new item recently ingested? I doubt that questioning your doctor would help solve this, as they have no real knowledge about the practical workings of an ostomy. Maybe an ostomy nurse could offer guidance based on her experience. Good luck with it. Henry M
Hi Buk do you take immodium or generic loratidine to slow things down, i take one before meals otherwise food goes right thru me, but i also eat foods like bananas, applsauce, peanut butter to thicken my output.
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I have also tried eating a marshmallow in the morning to slow output During the daytime. In your case maybe eating a marshmallow prior to your last evening meal would help that process as well. I too use Imodium on occasion but I'm kinda like that person who hates any kind of drugs. Both of them work though.
I like what HenryM said, check into not only when your eating but what. At night are you emptying alot of content or is it gas? Check on a unidentified food allergy. I myself could not touch dairy it would be game over for me for two days, also cucumbers are not something I trust at night. If this has gotten worse medication is ok but check into taking a good probiotic to get some good bacteria into your gut as your pushing so much out of you so fast your probably low on good bacteria in your gut.
You did not say what lead up to your illeostomy but if this is something that has progressively gotten worse check with your doctor to see if he has some input or concerns.
Hope this helps you.
Hi bukowski, I don't have that problem but shounds like you have gotten some good advice. Please update us when you find the soluation as that could help someone else with the same problem