Whatever it was that I did, or failed to do, that brought upon me the ulcerative colitis, determining what it was seemed to mystify the doctors that I saw. It’s psychosomatic, several of them announced. As far as I was concerned, given the pain that I was in, I put that diagnosis on a par with the Monty Python knight who, having just had his arm wacked off, kept insisting that it was “just a flesh wound.” It took me several years after ileostomy surgery in 1964 to throw off the shroud of disability that I’d wrapped myself in, and then I was okay. I finished school, got married, and by 1977 I was working hard, we had a two-year old daughter, and another on the way. Through the entirety of my illness, no one had mentioned that smoking wasn’t good for me and that, as a general good health measure, I ought to cut it out. I was smoking two to three packs of Camel cigarettes per day and enjoying each and every one of them. One day I was working late and, once I got off, rushed toward home hoping to get there in time to read my usual bedtime story to my little girl. I knew that I only had one cigarette left in the pack, but getting home quickly was too important to stop and buy another pack. Then – hooray – she was still up, whereupon I sat her on my lap on the couch and started to read the evening’s story. What happened next still amazes and bothers me, but—in hindsight – it was fortunate that it happened. I ignorantly and selfishly lit up that last smoke and, naturally, under the circumstances, with my daughter in my lap, smoke got into her face. “Oh papa,” she complained, “that’s pooey.” I haven’t had a cigarette since. [BTW, the cost of a pack then was fifty cents.]
MeetAnOstoMate is a remarkable community of 41,403 members.
“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”
“Our oncologist literally wrote down the link; they said more patients need this website.”
“This place pulled me out of the dark. I went from lurking to living again.”
“At 3am, someone’s awake somewhere in the world. I’m never alone here.”
MeetAnOstoMate website turned out to be a lifesaver for me. I say this because, for me, this ostomy journey was a devastating event both physically and mentally.
Here, I found folks who understood my feelings even better than my family or friends could. Only a fellow ostomate can understand how you really feel.
Information sharing is key, as well as support and understanding, to ultimately bring more harmony into our ostomy life journey. I found here, virtually no ostomy questions that are not touched upon. Questions which some might feel, may be too trivial to contact a doctor about or even too shy or embarrassed to ask their own doctor about. They are all addressed here.
For me, anonymity was very helpful in seeking answers to each phase of this life changing medical and mental event. Sharing initial trauma feelings, ongoing support and finally acceptance was what I found with my membership here. I am not sure what my mental and physical attitude would be today without having found this site.
Additional benefits included: finding products and ideas to help with daily maintenance, innovative ideas and as a bonus - some great humor.
After all “laughter IS the best medicine”.
I have been a member for 3 years, an ostomate for 4 years - yes, I certainly wish I would have found it immediately after surgery but so very thankful I finally found it when I did as I truly believe it turned my troubled depression and situation into a more positive attitude and acceptance.
Sincerely,
An Ileostomate nicknamed Justbreathe 🫶🏼
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