An ostomy is a pre-existing condition, a secret one, living under our clothing and not allowing us to forget it is there, like an intrusive old aunt who keeps phoning, wondering when we’re going to come visit her again. It became a part of me after five terrible months of hospitalization and a last-ditch surgery. That I survived all that is not something that I regard with reverence as a bridge to some deeper purpose, for I put no store in fate or faith. There is another f-word which I have relied upon with some frequency, along with a few of its equally crude philological cousins, a relief that provides more comfort than prayer. The ostomy did allow me the continuing opportunity to be ambulatory, to be conscious of the small, wonderful things I see: the new leaf in the spring, the small frog on my kitchen window in the morning, the marvel of approaching rain. We have to take advantage of our other pre-existing condition: consciousness.
MeetAnOstoMate is a remarkable community of 41,419 members.
“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”
“Our oncologist literally wrote down the link; they said more patients need this website.”
“This place pulled me out of the dark. I went from lurking to living again.”
“At 3am, someone’s awake somewhere in the world. I’m never alone here.”
MeetAnOstoMate website turned out to be a lifesaver for me. I say this because, for me, this ostomy journey was a devastating event both physically and mentally.
Here, I found folks who understood my feelings even better than my family or friends could. Only a fellow ostomate can understand how you really feel.
Information sharing is key, as well as support and understanding, to ultimately bring more harmony into our ostomy life journey. I found here, virtually no ostomy questions that are not touched upon. Questions which some might feel, may be too trivial to contact a doctor about or even too shy or embarrassed to ask their own doctor about. They are all addressed here.
For me, anonymity was very helpful in seeking answers to each phase of this life changing medical and mental event. Sharing initial trauma feelings, ongoing support and finally acceptance was what I found with my membership here. I am not sure what my mental and physical attitude would be today without having found this site.
Additional benefits included: finding products and ideas to help with daily maintenance, innovative ideas and as a bonus - some great humor.
After all “laughter IS the best medicine”.
I have been a member for 3 years, an ostomate for 4 years - yes, I certainly wish I would have found it immediately after surgery but so very thankful I finally found it when I did as I truly believe it turned my troubled depression and situation into a more positive attitude and acceptance.
Sincerely,
An Ileostomate nicknamed Justbreathe 🫶🏼
Learn more about ostomy accessories, and when to use them.


