Urostomy Bag Losing Air When Connected to Bedside Drainage

Replies
3
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909
trishthedish
Oct 23, 2020 8:46 pm

Hello! I am asking for a neighbor: "My urostomy bag loses air/as if air suctioned out at night when I'm attached to bedside drainage." Has anyone else ever had this problem or can think of a solution? He has a parastomal hernia with an ulcer right above the stoma, and the os is on the side of his flush stoma (yup, poor guy!!) if that matters. But the issue here is the suction-like effect at night. I don't think the other stuff has anything to do with this problem, but maybe it does. Is there some kind of lubricant to put in the bag? I know some colostomies use bag lube. Thanks :))

MBT
Oct 23, 2020 10:11 pm

Is he using a bottle system or bedside bag?

Uro2011
Oct 23, 2020 10:57 pm
Very helpful

I have a Urostomy and use a drainage container attached to my bed frame. I always make sure I have some urine in my pouch prior to going to bed and hooking up the drainage container so that it creates a vacuum/suction effect. My pouch will also be flat/sandwiched together because of the suction effect but I have never had an issue as the urine always finds its way into the drainage container regardless if it appears no air is in the pouch. Hope this helps. 

Posted by: ejbetty

Geekyjen,

Thanks for the reply.  I will be seeing my doctor on Friday and mention Entyvio.  I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared.  The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade.  Turns out I have been diagnosed with LUPUS. It is attacking my nervous system.  I had ulcerative colitis in 1996 and they had to remove my colon.  Had a J pouch for 10 years, until it started failing.  I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently.  I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared.  I have had two hospital stays now because of the blisters and the paralyzing incident.  I will be dealing with this forever now.  I have just been working on acceptance.

I love this website because of wonderful people like you!

 

Betty

roseyNme
Oct 24, 2020 5:17 pm
Very helpful

Yes, mine does that too, but it has never been an issue. The urine always makes it to the bag. 

paul