Hello! I am asking for a neighbor: "My urostomy bag loses air/as if air suctioned out at night when I'm attached to bedside drainage." Has anyone else ever had this problem or can think of a solution? He has a parastomal hernia with an ulcer right above the stoma, and the os is on the side of his flush stoma (yup, poor guy!!) if that matters. But the issue here is the suction-like effect at night. I don't think the other stuff has anything to do with this problem, but maybe it does. Is there some kind of lubricant to put in the bag? I know some colostomies use bag lube. Thanks :))
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
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Using ostomy accessories to create a personalized pouching system can help you prevent leaks and protect your skin.
Learn about the physical and emotional benefits of using ostomy accessories.
Learn about the physical and emotional benefits of using ostomy accessories.



