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Interesting Hollister Email

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Thu Oct 29, 2020 7:07 pm

Hi Gang,

  A few weeks back I got an email from Hollister that had ostomy care tips.  It was one of many they send me that almost always goes right in the round file, but for some reason I clicked on it.  I can give you guys the link if you're interested, but there wasn't much new info there.  Except one thing DID catch my eye.  Hollister recommends that you DO NOT use any soap at all when you clean the skin around your stoma........just plain water.  Maybe I'm living in a cave, but I've never heard that recommendation before.  I've heard what soaps not to use, what soaps to use......but never not to use any soap.  I'm not sure how I feel about that recommendation, but I'm giving it a try.  I sort of feel using something to clean the skin should be used, and then just make sure it's fully removed.......but it's hard to argue with my results so far.  No real new skin issues since doing it, and because of that I've also stopped using ostomy powder, skin protectant wipes and only use topical steroid foam if there is an abrasion or such on some part of my skin......to knock it the hell out of there immediately. So at least initially....it's not making things worse.....and that's always good.  So I'll keep at it and let you know how it goes. 

  But I'm wondering if any of you had heard of the recommendation to not use ANY soap or cleaner on the skin under your barrier after you remove it?  What say ye?

 

thanks,

bob

Thu Oct 29, 2020 8:11 pm

I don't remember if I heard that some where or not.  But I just use water then use the  adhesive remover then wipe that off. Best wishes and stay safe

Thu Oct 29, 2020 8:45 pm

I have heard that but cannot tell you where. I do not follow that and use my normal soft soap shower gel. Mine has never caused me any issues. I do wear a two piece so only actually get to shower without any flange about every 10 days. I also use an adheasive wipe remover if needed. 
hey, if it helps, I say go with it! 
Pup

Thu Oct 29, 2020 10:10 pm

I've heard that from my ET nurses right from the start. They all said "less is more" the less powder, fillers, wedges, etc the better. I only use water to clean around my stoma and then spray and rub my skin around the stoma with hydrogen peroxide and let it sit for a bit, and then dry my skin with a paper towel and a blow dryer on low. My skin has been awesome for years now and I can't remember the last time I had a leak. 

Thu Oct 29, 2020 10:23 pm

  

  Hi Bob, 

I asked my wound care nurse about bags leaking a while back and they told me to use just water and the adhesive remover. 

 My routine goes: baby wipes, adhesive remover, shaving cream/shave, wipe dry, wipe good twice with water, put a dry paper towel over it, wave air over and put the bag on. Good for 5-6 days. 

Take care, and do what works for you.  ..mountain. 

Thu Oct 29, 2020 10:50 pm

when i first got my ostomy in 2003 the nurse at the hospital told me never to use anything but water. and that's pretty much what i've stuck to since.  if things are very messy or there's too much adhesive buildup, I occasionally use sensitive skin baby wipes, followed by more water. i don't have too many skin issues unless i go too long between changes. 

Thu Oct 29, 2020 11:01 pm

Yes, it feels weird but that is exactly what is recommended : ) The pouches don't like soap. Skin really doesn't like soap residue with pouch on top. I've only heard wound/ostomy nurses recommend one type of soap, and only for occasional use!

Fri Oct 30, 2020 5:06 am

I use the Hollister CeraPlus skin barriers advertised on this site and they are great.  They require no adhesive, have easy-remove tape built on, are thinner than a dime, light weight, easy on/off, and I've never had a leak.  I've never used soap, just water with a few cotton balls, dry it with a tissue, slam bam thank you ma'am.  If you feel the need for soap, you might consider a bar of Ivory, as it doesn't have the additives that other commercial soaps use.  Stay well, everyone. P.S.  With this appliance, tho' it can accomodate a belt, I never use one.



Last edited by HenryM on Mon Nov 02, 2020 11:29 am; edited 1 time in total
Fri Oct 30, 2020 6:45 am

Hi all in my 35yrs. as an ostomate i have only used warm water never hot with a soft face cloth.

Axl
Fri Oct 30, 2020 7:34 am

Yep only water here .............  thats always been the advice.

Fri Oct 30, 2020 10:19 am

It all seems such a long time ago now, but when I first started,  one manufacturer was giving out a clear cup-shaped device to half fill with water for the purpose of rinsing and cleaning the stoma. I have been using it ever since and found it to be idealfor the purpose it was intended. I also have a bath each morning and always soap myself all over ( including the stoma area) and rarely have any problems with this. Once again it is probably useful to simply experiment with what works or does not work for you.

Best wishes

Bill

Fri Oct 30, 2020 11:24 am

I was told way back in 1989 to never use soap around my stoma I have done on ocassions but my normal routine is just washing with water, I very very rarely ever have any skin problems wheather thats down to just using water or just plain old good luck I have no idea all I know is it works for me 

Fri Oct 30, 2020 2:24 pm

Hi Guys,

  Great info!  I guess I just assumed everyone used soap because I was told to do so, and when I first found this site some of the first active posts I read were about advice on which soaps to use and which to avoid. Heck, I'm glad I asked!!  Thanks much!!!!

regards,

bob

Sat Oct 31, 2020 7:42 pm
w30bob wrote:

Hi Guys,

  Great info!  I guess I just assumed everyone used soap because I was told to do so, and when I first found this site some of the first active posts I read were about advice on which soaps to use and which to avoid. Heck, I'm glad I asked!!  Thanks much!!!!

regards,

bob


Bob, I had my illestomy four years ago. The ostomy nurse told me not to use soap, and I never have. I do use warm water, adhesive remover, stomahesive powder, and barrier wipes. I make sure that everything is clean and DRY, as I know you do, also. I have never had a leak in four years (I probably just jinxed myself!). 
Lucy

Sat Oct 31, 2020 10:44 pm
Little Lulu wrote:


Bob, I had my illestomy four years ago. The ostomy nurse told me not to use soap, and I never have. I do use warm water, adhesive remover, stomahesive powder, and barrier wipes. I make sure that everything is clean and DRY, as I know you do, also. I have never had a leak in four years (I probably just jinxed myself!). 
Lucy

Hi Lucy,

  I doubt you jinxed  yourself........rather you found what works for you and you've stuck with it.  That's awesome!  What I do seems to work, but I think it could always be better.  Thanks for sharing!

 

regards,

bob

Sun Nov 01, 2020 9:09 am

Wow... I've never even given my routine any thought ! I'm like a robot changing my appliance. But, no ..I only use water. I use powder..dab..dry..ring..one piece bag. No removal wipes. It was great reading all the answers. Thanks 

Sun Nov 01, 2020 10:19 am

Hey Ritz Crackers.........how are you?  Yeah, it seems there's as many different routines for barrier changes as there are people.  When I left the hospital after getting my frontbutt it would have been nice to have been given a list of Do's and Don'ts (with Why's and Why Nots).......but that wasn't the case.  So how people have dealt and continue to deal with their ostomy problems on here is and was a real eye opener for me.  Variety is the spice of life they say.........although I'm sure they weren't thinking along the lines we are.  Lots of good info on here, it just needs to be stirred up some times.

regards,

bob

Sun Nov 01, 2020 11:40 pm

Hi, Bob~

For me, it's adhesive remover wipe, rinse/pat twice with sterile saline solution, 10-minute soak of healing ulcerations with 50-50 white vinegar/distilled water, air dry, prep ulcerations for appliance, apply appliance.  No soap in sight...nor have I heard anyone until now ask "Soaps:  Pro or Con?"  Thanks for bringing up the topic!

Lily17~

Mon Nov 02, 2020 11:01 am
w30bob wrote:

Hey Ritz Crackers.........how are you?  Yeah, it seems there's as many different routines for barrier changes as there are people.  When I left the hospital after getting my frontbutt it would have been nice to have been given a list of Do's and Don'ts (with Why's and Why Nots).......but that wasn't the case.  So how people have dealt and continue to deal with their ostomy problems on here is and was a real eye opener for me.  Variety is the spice of life they say.........although I'm sure they weren't thinking along the lines we are.  Lots of good info on here, it just needs to be stirred up some times.

regards,

bob

Hey Bob .... Doin just fine here . I was in the hospital forever after my surgery...that I just piped in on doing my own thing when crap needed to get done. I found little as possible is more than enough and my stoma loves me for it. Shaking, but hell, I can get thru anything. I've been on an adventure in life to say the least. It's great to stir the pot on here or anywhere for that matter. I enjoy reading the forums and responses on here and have soaked in so much information. Things I never knew I could do before. What a waste of my summer though, as I was so nervous to swim until I found out here. We are still incredibly hot and too dry here....so wherever you are, please send some rain my way ...or snow...I'll settle for a bucket! Stay safe and happy ...the only way to fly....Ritz

bj
Wed Nov 04, 2020 1:13 pm

I was told to be careful with any soaps.  When my surrounding wounds were finally closed I took a shower without a wafer and it was SO freeing!  I did not use soap, but I washed my hair.  Even tho I rinsed really well, and didn't put soap on the area around "Stella", I had the WORST breakout under my after-shower wafer!  It was open, painful, red...horrible!  I came up with a way to deal with it and it healed, but it wasn't fun.  I haven't been in the shower without Stella being in full gear since.  

Wed Nov 04, 2020 1:18 pm

Hi i was told to only use ivory soap and i have been using this for 7 years now with no problems with holister and now using ConvaTec ...they said not to use other soaps with moisturizers because they cause issues with the barrier not sticking...

Judy

 

 

Wed Nov 04, 2020 6:13 pm
WIGirl43 wrote:

when i first got my ostomy in 2003 the nurse at the hospital told me never to use anything but water. and that's pretty much what i've stuck to since.  if things are very messy or there's too much adhesive buildup, I occasionally use sensitive skin baby wipes, followed by more water. i don't have too many skin issues unless i go too long between changes. 


Hi  " O" Mates....      Marsha here.      Re Soap and cleaning skin around the stoma.   I have my ileostomy for over 55 years.   Back in the " olden" days, there were no stoma therapists, and when surgeons were done with us, we were on our own,   or visited by  "visiting members of the local ostomy assoc.".   No  real training, just people who   helped others.   I was only 15 when I had my surgery,   and I went back to taking baths when I was completely healed.   But I ran into some problems with the soap i was using ( Ivory soap)   back then...   When I finally got a " permanent appliance" instead of wearing the  disposable plastic/ bags & flanges ( cardboard)  I  found that soap, any soap was interferring with the adhesion of the new ( Hard plastic face plate).   More experienced ostomates advised me NOT to wash  the area around the stoma with  any kind of soap......and that's been the routine I've used since then.    I use to love taking baths,   but gave it up in favor  of showers,  for the same reason..( soapy hot water)   reduces the adhesion time even for the newer products out today..     I use the solvent removers ( to get the paste and powder off my skin....and then wash the skin with both hot water, and cold water ( to close the pores),    Every once in awhile,   when I shower without my appliance on,   I remember to be careful, not to soak t he stoma  area with lotion laden ( for my very dry body skin)  soap.    So for those of you who have " heard rumors"......no soap was the rule of " thumb".   For those of you who do  take chances and use soap,    just remember to clean the skin very well, after..      Best of luck to all ...   Marsha  

 

Thu Nov 05, 2020 2:38 pm

Never heard of no soap. I just pull the bag, flange and ring off then clean up with a little TP then adhesive remover and jump into the shower. I use shampoo on my head and all over including stoma area (Tresemme, clean & natural) to get any remaining bits of the ring off. Then get out and towel dry, then lay on bed and take care of any moisture with a face cloth, when dry apply skin prep then ring and flange and bag. If I take a bath I shower after to remove any residue from the bath 🛁 products.

Fri Nov 06, 2020 12:23 am

Hi guys,

Interesting how we're told different things, such as soap or no soap. The ostomy nurse told me to use a soap with no moisturizer and as little fragrance as possible, when I got my ostomy. Basically the simpler the soap the better. I remember her saying not to use Ivory, but don't remember what she did say to use.  But as I said, I've been changing my barrier without any soap for a couple weeks now......and although it may be just coincidence, my skin around my stoma is as healthy as it's ever been. I think it's too early for me to declare victory......but so far the results are impressive! Thanks for the replies!

Regards,

Bob

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