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Everything went well except!

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Wed Mar 03, 2021 3:41 am

Hi 

I had my reversal 2 and a half months ago everything went well. 

After the reversal, I don't know why but my surgeon decided to close the whole wound and that caused infection but everything went fine I took meds and they opened the wound cleaned it and let it close itself. Of course, I had to change the dressing every day but now it's fully closed. 

 

Recently I experienced something weird 😕 in the place where the stoma was I started to feel like something liquid going out of it but there’s nothing! I feel like it’s under my skin and it's every day differ from the previous days. Sometimes I feel like something itching and sometimes I experience feeling like my muscles stretch.. But there is no pain no fever trip to the toilet is very good.

 

I had my stoma due to inflammation in my small bowels caused by chron’s disease which something they not sure about, I never had pain in my stomach I never experienced blood in my stool all I know is that I drank cold coffee while the weather is freezing and later that day I got a fever, I went to the er they did a colonoscopy and boom “you have chron’s since a long time ago but there are no symptoms and we are not sure if you have it or not”

Wed Mar 03, 2021 4:34 am

Hi jfd,

 Well what you describe is certainly weird.......not sure what to say. Do you still get the sensation?  If they did a scoping it's routine to take biopsies (small pieces of bowel wall removed and checked for disease). Those take a bit of time to process, so you should ask if they have the results.......which hopefully will be negative. Otherwise, it's probably just your bowels repositioning themselves......which they do as they settle into their new position. Keep us posted.

Regards,

Bob

Wed Mar 03, 2021 4:46 am
w30bob wrote:

Hi jfd,

 Well what you describe is certainly weird.......not sure what to say. Do you still get the sensation?  If they did a scoping it's routine to take biopsies (small pieces of bowel wall removed and checked for disease). Those take a bit of time to process, so you should ask if they have the results.......which hopefully will be negative. Otherwise, it's probably just your bowels repositioning themselves......which they do as they settle into their new position. Keep us posted.

Regards,

Bob


Hi bob

 

I think I didn't explain my thoughts very well, they did colonoscopy before I get my stoma which is before 1 year ago

 

I got this problem recently after the take-down process. But before the reversal, they did another colonoscopy to check if everything is good to go with the reversal and surprisingly the Dr told me that there’s no single evidence that you had Crohn's. 

 

But as I said the sensation problem is new after the reversal 

Wed Mar 03, 2021 8:47 am

All these sensations  do sound a bit strange. However, after any surgery there will be things happening inside that create strange sensations. the healing process is stringe in itself and when combined with things like scar tissue and nerve endings there can be all sorts of weird sensations going on. I found that some surgeons are reluctant to being open about these after effects in case it reflects badly on their procedures. the ones that are more communicative can be quite reassuring if they can give rational explanations to account for what you are 'feeling' (even if it is psychological)!  Sometimes these medics simply don't know about what we go through once they have finished their part of the procedure and this is where the stoma nurses can sometimes be very informative and supportive.   Of course, there may be someone on here who has been through the same sort of thing and can offer some insight and perhaps advice, but if that doesn't happen, then a chat with an experienced  stoma nurse might be useful.   I understand that some of the major manufacturers have such people on their staff wjho are tasked with the role of tlaking these things through with people, so this might be an avenue for support.

Best wishes

 

Bill

 

Wed Mar 03, 2021 8:56 am
Bill wrote:

All these sensations  do sound a bit strange. However, after any surgery there will be things happening inside that create strange sensations. the healing process is stringe in itself and when combined with things like scar tissue and nerve endings there can be all sorts of weird sensations going on. I found that some surgeons are reluctant to being open about these after effects in case it reflects badly on their procedures. the ones that are more communicative can be quite reassuring if they can give rational explanations to account for what you are 'feeling' (even if it is psychological)!  Sometimes these medics simply don't know about what we go through once they have finished their part of the procedure and this is where the stoma nurses can sometimes be very informative and supportive.   Of course, there may be someone on here who has been through the same sort of thing and can offer some insight and perhaps advice, but if that doesn't happen, then a chat with an experienced  stoma nurse might be useful.   I understand that some of the major manufacturers have such people on their staff wjho are tasked with the role of tlaking these things through with people, so this might be an avenue for support.

Best wishes

 

Bill

 


Hi bill

I agree with all you said, my appointment with the stoma nurse is tomorrow so I hope it’s nothing that serious 
Wish me luck, please 

Thank you for your helpful words 

Wed Mar 03, 2021 9:57 am

Hi JFD i had resection surgery 3yrs. ago and stoma moved from right to left side, if i eat a big meal i sometimes get a feeling in the spot where my old stoma was of movement under the skin and as for gurgling my guts are always making noises, matter of fact when my daughter drops her dog off and he sits by me he stares at my gut like what the hell was that after it gurgles, squeaks, and other sounds. 

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