I've had my colonostomy a few months now, the bag just feels like it's pulling, any suggestions on what I can do
jdscott1960
Mar 23, 2021 4:51 pm
darrenc26
Mar 23, 2021 5:27 pm
Hey jdscott,
The best thing I can suggest, I’ve had a colostomy in the past, now have an ileostomy, Is to contact your stoma nurse team at your local clinic or hospital, they will be the best ppl to help you, they can try different bags for you or place it better around your stoma. That’s what they did for me here in England a few times over the years.
Hope this helps and email back anytime,
Darren clark
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Posted by: Primeboy
Hi Mike and all. I am not sure how panoramic my perspective really is as my peripheral vision shrinks with each passing year. I can tell you that when I came to this website six years ago I was truly ;impressed by the positive attitudes of so many members, especially the younger folks who refused to let their ostomies define who they were or what they would become. I also came to appreciate that having an ostomy is not the same thing as having a disease. Pardon ;my pun now, but ostomies and cancer don't belong in the same bag. One is a solution, the other is a problem. Celebrating National Ostomy Day ;is also well outside my comfort zone. That's like celebrating National Wheel Chair Day. Come on!
I think there is a ;need for improved ;public awareness of ostomies, but I am not sure how that's best done. There ;remains ;some social stigma attached to our situation, and it's acutely felt among our young. We need to get out of the dark ages on this issue, but not by going 'in your face' to everyone else. I think Bill and NDY are 'spot-on' when it comes to telegraphing the right message to friends and family. People will know how to react when they ;see ;how we accept the cards we were dealt. I also appreciate the contribution some people here are making to this effort through their publications.
On a personal note, my son has been suffering from ulcerative colitis for years just like I did. I am very concerned because people with UC are at a higher risk for colon cancer. Years ago my GI told me to get annual colonoscopies to be on the safe side. I am glad I did because he eventually found pre-cancerous cells which led to several surgeries and my becoming an ostomate. Since then I have always ;conveyed a positive attitude to ;my son about wearing a bag because it has kept me alive to enjoy many more years with my loved ones. I think he got the message. We both go to the same gastroenterologist in NYC and get scoped on the same day. Father and Son moments!
Someone once wrote that our children are the letters we write to the future.
PB
Puppyluv56
Mar 24, 2021 1:27 am
Hi JD,
Is it pulling when you stand straight, when you sit? Does it feel Like it is pulling while you are having output. Sometimes mine feels like it is pulling while doing it's thing and I find that it has pancaked around the stoma and the poo won't go down Into the pouch and it pulls. You can use lubricant or baby oil to help that. Or change to a convex pouch. It is shaped differently anf allows more room around the stoma.
If it pulls all the time , take a look at how you are standing when you attach to pouch. Do You pull your skin tight when applying it? Try to stand in a natural pose. If you pull your skin tight, then you will have wrinkles under the barrier and may have some pulling. You skin may be trying to go back where it belongs and cannot because of the barrier tape. It does hurt.
Hope this helps some.
Puppyluv
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lovely
Mar 24, 2021 2:29 am
Puppyluv has some good suggestios. You can also get in touch with some of the venders they can suggestion to help and will send you some sample to try. Best wishes and stay safe
ron in mich
Mar 24, 2021 1:57 pm
Hi JD i,m not sure what you mean by pulling, is it because the pouch is full and feels heavy or does it feel like its internally in which case is your output real thickand doesnt flow out into the pouch, so maybe you need to drink more fluids like fruit juice or just more water.
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