Finding Caregivers Experienced with Ileostomy Patients

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MOST52
Mar 31, 2021 2:49 am

Do mostt agencies have caregivers whio are capable of caring for someone with an ileo?  I'm at the age I worry about end of life issues. How do I obtain one when needed?

Lily17
Mar 31, 2021 3:24 am

Good Evening, Most~

There could be numerous agencies to contact near you:

County Senior Services

Hospice Organizations (through a local hospital and/or private business)

The UOAA (United Ostomy Association of America)-affilitated Support Group nearest you:  www.ostomy.org

Also consider reaching out to your surgeon's office and/or your GI doctor's office for possible guidance.

I hope you are able to get information from these resources to ease your mind & spirit.

Lily17~

Posted by: GoinWithTheFlow

Hubz had a regular checkup with the oncologist on Friday (his numbers are improving), and as they were asking how he's feeling since surgery, they became curious about how he's doing so well with his ostomy, both physically and mentally. He credited doing research online, trying different things, and especially the support from this group. They were asking because they see so many patients struggling to adjust.

We described this group as folks with every kind of ostomy, some for days while others for decades, but all willing to share what's worked for them with the caveat that every individual is different.

We described the most valuable element as feeling like you're not alone in this. That really piqued their interest, and they wrote down the link. It seems they had a few people in mind that might benefit from the community and thanked us for telling them about it.

You know, we can't remember exactly who we learned about this group from, but we're grateful for it every day! Thank you all! 🌻

MOST52
Mar 31, 2021 1:30 pm


Thank you so much.  Great info!